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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250609T190000
DTEND;TZID=America/New_York:20250609T190000
DTSTAMP:20260430T133013
CREATED:20250521T141328Z
LAST-MODIFIED:20250527T190641Z
UID:10000110-1749495600-1749495600@vhl.org
SUMMARY:Charla Informativa con Dr. Alejandro Sanchez sobre Von Hippel-Lindau\, con Preguntas y Respuestas  | VHL Informational Session and Q&A with Dr. Alejandro Sanchez [IN SPANISH]
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/charla-informativa-con-dr-alejandro-sanchez-sobre-von-hippel-lindau-con-preguntas-y-respuestas-vhl-informational-session-and-qa-with-dr-alejandro-sanchez-in-spanish/
LOCATION:PA
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/05/Spanish-webinar-promo-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250611T193000
DTEND;TZID=America/New_York:20250611T203000
DTSTAMP:20260430T133013
CREATED:20240605T174457Z
LAST-MODIFIED:20240605T174457Z
UID:10000096-1749670200-1749673800@vhl.org
SUMMARY:June Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/june-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/June-11-What-are-your-worries-related-to-VHL-_-vision-loss-and-how-do-you-handle-them.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250614T090000
DTEND;TZID=America/New_York:20250614T130000
DTSTAMP:20260430T133013
CREATED:20250429T084039Z
LAST-MODIFIED:20250502T143416Z
UID:10000109-1749891600-1749906000@vhl.org
SUMMARY:VHL Connect | Mass General
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/vhl-connect-mass-general/
LOCATION:Mass General\, 185 Cambridge St\, Boston\, MA\, 02114\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/04/vhl-connect-boston.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250707T200000
DTEND;TZID=America/New_York:20250707T210000
DTSTAMP:20260430T133013
CREATED:20250630T191620Z
LAST-MODIFIED:20250630T191640Z
UID:10000111-1751918400-1751922000@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/july-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/06/build-a-support-network-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250709T193000
DTEND;TZID=America/New_York:20250709T203000
DTSTAMP:20260430T133013
CREATED:20250701T192832Z
LAST-MODIFIED:20250701T192832Z
UID:10000112-1752089400-1752093000@vhl.org
SUMMARY:July Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/july-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/Decision-Fatigue-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250801
DTEND;VALUE=DATE:20250804
DTSTAMP:20260430T133013
CREATED:20241028T172715Z
LAST-MODIFIED:20250721T164225Z
UID:10000104-1754006400-1754265599@vhl.org
SUMMARY:Family Weekend 2025 | Ann Arbor\, Michigan
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/family-weekend-2025-ann-arbor-michigan/
LOCATION:PA
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/10/Family-Weekend-2025-Promo-University-of-Michigan-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250804T200000
DTEND;TZID=America/New_York:20250804T210000
DTSTAMP:20260430T133013
CREATED:20250725T133633Z
LAST-MODIFIED:20250725T133633Z
UID:10000119-1754337600-1754341200@vhl.org
SUMMARY:August Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/august-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/aug-4-2025-building-a-healthy-support-network-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250813T193000
DTEND;TZID=America/New_York:20250813T203000
DTSTAMP:20260430T133013
CREATED:20250725T132152Z
LAST-MODIFIED:20250725T132152Z
UID:10000113-1755113400-1755117000@vhl.org
SUMMARY:August Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/aug-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/aug-13-2025-hacks-for-making-life-easier-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T200000
DTEND;TZID=America/New_York:20250908T210000
DTSTAMP:20260430T133013
CREATED:20250725T133911Z
LAST-MODIFIED:20250725T133911Z
UID:10000120-1757361600-1757365200@vhl.org
SUMMARY:September Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/september-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/sept-8th-2025-emotional-well-being-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250910T193000
DTEND;TZID=America/New_York:20250910T203000
DTSTAMP:20260430T133013
CREATED:20250725T132410Z
LAST-MODIFIED:20250725T132425Z
UID:10000114-1757532600-1757536200@vhl.org
SUMMARY:September Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/sept-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/sept-10-2025-expressing-your-feelings-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251006T200000
DTEND;TZID=America/New_York:20251006T210000
DTSTAMP:20260430T133013
CREATED:20250725T134023Z
LAST-MODIFIED:20250725T134023Z
UID:10000121-1759780800-1759784400@vhl.org
SUMMARY:October Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/october-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/october-6th-2025-self-advocacy-and-resilience-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251008T193000
DTEND;TZID=America/New_York:20251008T203000
DTSTAMP:20260430T133013
CREATED:20250725T132635Z
LAST-MODIFIED:20250725T132635Z
UID:10000115-1759951800-1759955400@vhl.org
SUMMARY:October Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/october-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/oct-8-2025-what-is-support-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251103T200000
DTEND;TZID=America/New_York:20251103T210000
DTSTAMP:20260430T133013
CREATED:20250725T134135Z
LAST-MODIFIED:20250725T134135Z
UID:10000122-1762200000-1762203600@vhl.org
SUMMARY:November Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/november-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/nov-3rd-2025-family-and-relationship-dynamics-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251112T193000
DTEND;TZID=America/New_York:20251112T203000
DTSTAMP:20260430T133013
CREATED:20250725T132832Z
LAST-MODIFIED:20250725T132832Z
UID:10000116-1762975800-1762979400@vhl.org
SUMMARY:November Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/november-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/nov-12-2025-confidence-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251117T160000
DTEND;TZID=America/New_York:20251117T170000
DTSTAMP:20260430T133013
CREATED:20251020T141626Z
LAST-MODIFIED:20251028T163144Z
UID:10000126-1763395200-1763398800@vhl.org
SUMMARY:Webinar Series: The Importance of Coordinated Care in Addressing VHL
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/webinar-series-the-importance-of-coordinated-care-in-addressing-vhl/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/10/VHL-101-Research-Update-with-Othon-Iliopoulos-MD-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251201T200000
DTEND;TZID=America/New_York:20251201T210000
DTSTAMP:20260430T133013
CREATED:20250725T134227Z
LAST-MODIFIED:20250725T134227Z
UID:10000123-1764619200-1764622800@vhl.org
SUMMARY:December Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/december-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/dec-1-2025-navigating-the-complicated-healthcare-system-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251206T080000
DTEND;TZID=America/New_York:20251206T140000
DTSTAMP:20260430T133013
CREATED:20251020T144931Z
LAST-MODIFIED:20251022T164920Z
UID:10000127-1765008000-1765029600@vhl.org
SUMMARY:VHL Connect: Atlanta
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/vhl-connect-atlanta/
LOCATION:Hilton Millennium Center\, 2301 Sullivan Rd\, College Park\, GA\, 30337\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/10/vhl-connect-atlanta.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251210T193000
DTEND;TZID=America/New_York:20251210T203000
DTSTAMP:20260430T133013
CREATED:20250725T133019Z
LAST-MODIFIED:20250725T133019Z
UID:10000117-1765395000-1765398600@vhl.org
SUMMARY:December Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/december-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/dec-10-2025-friendships-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260105T200000
DTEND;TZID=America/New_York:20260105T210000
DTSTAMP:20260430T133013
CREATED:20250725T134435Z
LAST-MODIFIED:20250725T134435Z
UID:10000125-1767643200-1767646800@vhl.org
SUMMARY:January Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/jan-patient-caregiver-call-2026/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/jan-5th-2025-living-fully-with-VHL-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260114T193000
DTEND;TZID=America/New_York:20260114T203000
DTSTAMP:20260430T133013
CREATED:20250725T133227Z
LAST-MODIFIED:20250725T133244Z
UID:10000118-1768419000-1768422600@vhl.org
SUMMARY:January Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/january-low-no-vision-call-2026/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/jan-14th-2025-bucket-lists-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260202T200000
DTEND;TZID=America/New_York:20260202T210000
DTSTAMP:20260430T133013
CREATED:20260108T162529Z
LAST-MODIFIED:20260108T162529Z
UID:10000128-1770062400-1770066000@vhl.org
SUMMARY:February 2nd Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/feb-2-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Feb-2-2026-Coping-with-uncertainty-and-the-future.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T193000
DTEND;TZID=America/New_York:20260211T203000
DTSTAMP:20260430T133013
CREATED:20260113T151810Z
LAST-MODIFIED:20260113T151810Z
UID:10000134-1770838200-1770841800@vhl.org
SUMMARY:Feb 11th Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/feb-11-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Feb-11-2026-go-bag-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260302T200000
DTEND;TZID=America/New_York:20260302T210000
DTSTAMP:20260430T133013
CREATED:20260108T162704Z
LAST-MODIFIED:20260108T162704Z
UID:10000129-1772481600-1772485200@vhl.org
SUMMARY:March 2nd Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/march-2nd-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/March-2nd-2026-Pain-Management-Symptom-Supprt.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260311T193000
DTEND;TZID=America/New_York:20260311T203000
DTSTAMP:20260430T133013
CREATED:20260113T151857Z
LAST-MODIFIED:20260113T151857Z
UID:10000135-1773257400-1773261000@vhl.org
SUMMARY:March 11th Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/mar-11th-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/march-11th-household-management-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260321T090000
DTEND;TZID=America/Los_Angeles:20260321T120000
DTSTAMP:20260430T133013
CREATED:20260126T170233Z
LAST-MODIFIED:20260303T193637Z
UID:10000140-1774083600-1774094400@vhl.org
SUMMARY:VHL Connect | Seattle
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/vhl-connect-seattle/
LOCATION:PA
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Family-Weekend-2025-Promo-University-of-Michigan-7.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260406T200000
DTEND;TZID=America/New_York:20260406T210000
DTSTAMP:20260430T133013
CREATED:20260108T162806Z
LAST-MODIFIED:20260108T162806Z
UID:10000130-1775505600-1775509200@vhl.org
SUMMARY:April 6th Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/april-6-patient-caregiver-call-2/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/April-6-2026-Building-Sustainable-Routines.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260408T193000
DTEND;TZID=America/New_York:20260408T203000
DTSTAMP:20260430T133013
CREATED:20260113T152012Z
LAST-MODIFIED:20260113T152012Z
UID:10000136-1775676600-1775680200@vhl.org
SUMMARY:April 8th Low/No Vision Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/april-8th-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/april-8th-asking-for-what-you-need-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260413T180000
DTEND;TZID=America/New_York:20260413T190000
DTSTAMP:20260430T133013
CREATED:20260401T145021Z
LAST-MODIFIED:20260401T155429Z
UID:10000141-1776103200-1776106800@vhl.org
SUMMARY:Avances en la enfermedad de VHL y la investigación del cáncer renal: De la biología a nuevas terapias
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/avances-en-la-enfermedad-de-vhl-y-la-investigacion-del-cancer-renal-de-la-biologia-a-nuevas-terapias/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/VHL-101-Research-Update-with-Othon-Iliopoulos-MD.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T200000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260430T133013
CREATED:20260108T162928Z
LAST-MODIFIED:20260108T162928Z
UID:10000131-1777924800-1777928400@vhl.org
SUMMARY:May 4th Patient/Caregiver Call
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/may-4th-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/May4-2026-Sustaining-Yourself-While-Caring-For-Others.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T180000
DTEND;TZID=America/New_York:20260506T190000
DTSTAMP:20260430T133013
CREATED:20260424T140303Z
LAST-MODIFIED:20260424T140510Z
UID:10000143-1778090400-1778094000@vhl.org
SUMMARY:Parents of VHLers: Navigating Care\, Emotions\, and Growing Independence
DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary!				\n				\n				\n				\n									We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 								\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Purchase A Ticket\n\n                                    \n	                        \n        \n        				\n				\n				\n				\n					        \n\n            \n\n	    \n                \n\n                    \n                    Become A Sponsor
URL:https://vhl.org/vhla-event/parents-of-vhlers-navigating-care-emotions-and-growing-independence/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/VHL-101-Research-Update-with-Othon-Iliopoulos-MD-4.png
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