BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/Los_Angeles BEGIN:DAYLIGHT TZOFFSETFROM:-0800 TZOFFSETTO:-0700 TZNAME:PDT DTSTART:20260308T100000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0700 TZOFFSETTO:-0800 TZNAME:PST DTSTART:20261101T090000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20251201T200000 DTEND;TZID=America/New_York:20251201T210000 DTSTAMP:20260430T105244 CREATED:20250725T134227Z LAST-MODIFIED:20250725T134227Z UID:10000123-1764619200-1764622800@vhl.org SUMMARY:December Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/december-patient-caregiver-call-2025/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/dec-1-2025-navigating-the-complicated-healthcare-system-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251206T080000 DTEND;TZID=America/New_York:20251206T140000 DTSTAMP:20260430T105244 CREATED:20251020T144931Z LAST-MODIFIED:20251022T164920Z UID:10000127-1765008000-1765029600@vhl.org SUMMARY:VHL Connect: Atlanta DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/vhl-connect-atlanta/ LOCATION:Hilton Millennium Center\, 2301 Sullivan Rd\, College Park\, GA\, 30337\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/10/vhl-connect-atlanta.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20251210T193000 DTEND;TZID=America/New_York:20251210T203000 DTSTAMP:20260430T105244 CREATED:20250725T133019Z LAST-MODIFIED:20250725T133019Z UID:10000117-1765395000-1765398600@vhl.org SUMMARY:December Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/december-low-no-vision-call-2025/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/dec-10-2025-friendships-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260105T200000 DTEND;TZID=America/New_York:20260105T210000 DTSTAMP:20260430T105244 CREATED:20250725T134435Z LAST-MODIFIED:20250725T134435Z UID:10000125-1767643200-1767646800@vhl.org SUMMARY:January Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/jan-patient-caregiver-call-2026/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/jan-5th-2025-living-fully-with-VHL-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260114T193000 DTEND;TZID=America/New_York:20260114T203000 DTSTAMP:20260430T105244 CREATED:20250725T133227Z LAST-MODIFIED:20250725T133244Z UID:10000118-1768419000-1768422600@vhl.org SUMMARY:January Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/january-low-no-vision-call-2026/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/07/jan-14th-2025-bucket-lists-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260202T200000 DTEND;TZID=America/New_York:20260202T210000 DTSTAMP:20260430T105244 CREATED:20260108T162529Z LAST-MODIFIED:20260108T162529Z UID:10000128-1770062400-1770066000@vhl.org SUMMARY:February 2nd Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/feb-2-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Feb-2-2026-Coping-with-uncertainty-and-the-future.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260211T193000 DTEND;TZID=America/New_York:20260211T203000 DTSTAMP:20260430T105244 CREATED:20260113T151810Z LAST-MODIFIED:20260113T151810Z UID:10000134-1770838200-1770841800@vhl.org SUMMARY:Feb 11th Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/feb-11-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Feb-11-2026-go-bag-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260302T200000 DTEND;TZID=America/New_York:20260302T210000 DTSTAMP:20260430T105244 CREATED:20260108T162704Z LAST-MODIFIED:20260108T162704Z UID:10000129-1772481600-1772485200@vhl.org SUMMARY:March 2nd Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/march-2nd-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/March-2nd-2026-Pain-Management-Symptom-Supprt.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260311T193000 DTEND;TZID=America/New_York:20260311T203000 DTSTAMP:20260430T105244 CREATED:20260113T151857Z LAST-MODIFIED:20260113T151857Z UID:10000135-1773257400-1773261000@vhl.org SUMMARY:March 11th Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/mar-11th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/march-11th-household-management-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20260321T090000 DTEND;TZID=America/Los_Angeles:20260321T120000 DTSTAMP:20260430T105244 CREATED:20260126T170233Z LAST-MODIFIED:20260303T193637Z UID:10000140-1774083600-1774094400@vhl.org SUMMARY:VHL Connect | Seattle DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/vhl-connect-seattle/ LOCATION:PA CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Family-Weekend-2025-Promo-University-of-Michigan-7.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260406T200000 DTEND;TZID=America/New_York:20260406T210000 DTSTAMP:20260430T105244 CREATED:20260108T162806Z LAST-MODIFIED:20260108T162806Z UID:10000130-1775505600-1775509200@vhl.org SUMMARY:April 6th Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/april-6-patient-caregiver-call-2/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/April-6-2026-Building-Sustainable-Routines.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260408T193000 DTEND;TZID=America/New_York:20260408T203000 DTSTAMP:20260430T105244 CREATED:20260113T152012Z LAST-MODIFIED:20260113T152012Z UID:10000136-1775676600-1775680200@vhl.org SUMMARY:April 8th Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/april-8th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/april-8th-asking-for-what-you-need-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260413T180000 DTEND;TZID=America/New_York:20260413T190000 DTSTAMP:20260430T105244 CREATED:20260401T145021Z LAST-MODIFIED:20260401T155429Z UID:10000141-1776103200-1776106800@vhl.org SUMMARY:Avances en la enfermedad de VHL y la investigación del cáncer renal: De la biología a nuevas terapias DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/avances-en-la-enfermedad-de-vhl-y-la-investigacion-del-cancer-renal-de-la-biologia-a-nuevas-terapias/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/VHL-101-Research-Update-with-Othon-Iliopoulos-MD.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260504T200000 DTEND;TZID=America/New_York:20260504T210000 DTSTAMP:20260430T105244 CREATED:20260108T162928Z LAST-MODIFIED:20260108T162928Z UID:10000131-1777924800-1777928400@vhl.org SUMMARY:May 4th Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/may-4th-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/May4-2026-Sustaining-Yourself-While-Caring-For-Others.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260506T180000 DTEND;TZID=America/New_York:20260506T190000 DTSTAMP:20260430T105244 CREATED:20260424T140303Z LAST-MODIFIED:20260424T140510Z UID:10000143-1778090400-1778094000@vhl.org SUMMARY:Parents of VHLers: Navigating Care\, Emotions\, and Growing Independence DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/parents-of-vhlers-navigating-care-emotions-and-growing-independence/ LOCATION:Zoom / Online CATEGORIES:Workshop ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/VHL-101-Research-Update-with-Othon-Iliopoulos-MD-4.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260513T193000 DTEND;TZID=America/New_York:20260513T203000 DTSTAMP:20260430T105244 CREATED:20260113T152051Z LAST-MODIFIED:20260113T152051Z UID:10000137-1778700600-1778704200@vhl.org SUMMARY:May 13th Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/may-13-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/may-13th-who-were-the-most-supportive-people-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260601T200000 DTEND;TZID=America/New_York:20260601T210000 DTSTAMP:20260430T105244 CREATED:20260108T163035Z LAST-MODIFIED:20260108T163035Z UID:10000132-1780344000-1780347600@vhl.org SUMMARY:June 1st Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/june-1-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/June-1-2026-Communication-Advocacy-in-Healthcare-Settings.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260610T193000 DTEND;TZID=America/New_York:20260610T203000 DTSTAMP:20260430T105244 CREATED:20260113T152145Z LAST-MODIFIED:20260113T152426Z UID:10000138-1781119800-1781123400@vhl.org SUMMARY:June 10th Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/june-10-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/june-10th-needs-of-low-vis-community-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260706T200000 DTEND;TZID=America/New_York:20260706T210000 DTSTAMP:20260430T105245 CREATED:20260108T163201Z LAST-MODIFIED:20260108T163201Z UID:10000133-1783368000-1783371600@vhl.org SUMMARY:July 6th Patient/Caregiver Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/july-6-patient-caregiver-call/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/July-6-2026-Financial-Practical-Planning.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260708T193000 DTEND;TZID=America/New_York:20260708T203000 DTSTAMP:20260430T105245 CREATED:20260113T152523Z LAST-MODIFIED:20260113T152523Z UID:10000139-1783539000-1783542600@vhl.org SUMMARY:July 8th Low/No Vision Call DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/july-8th-low-no-vision-call/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/july-8th-mental-health-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20260807T170000 DTEND;TZID=America/New_York:20260809T143000 DTSTAMP:20260430T105245 CREATED:20260428T145054Z LAST-MODIFIED:20260428T194603Z UID:10000144-1786122000-1786285800@vhl.org SUMMARY:Family Weekend 2026 DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/family-weekend-2026/ LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/fam-weekend-promo.png ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20261106 DTEND;VALUE=DATE:20261109 DTSTAMP:20260430T105245 CREATED:20260423T125305Z LAST-MODIFIED:20260423T130204Z UID:10000142-1793923200-1794182399@vhl.org SUMMARY:VHL Alliance Medical Symposium DESCRIPTION:Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! \n \n \n \n We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate.   As a special note and honor to the incredible amount of work that has been achieved\, this year will be honoring:   Eric Jonasch\, MDDepartment of Genitourinary Medical Oncology\, Division of Cancer MedicineThe University of Texas MD Anderson Cancer Center\, Houston\, Texas   Date: Friday\, October 6\, 2023Time: Reception: 6:00 pm\, Dinner: 7:00 pmLocation: The Franklin Institute222 North 20th StreetPhiladelphia\, PA 19103   Price:Individual Tickets $300Tables of 10 available for $2500 \n \n \n \n \n\n \n\n \n \n\n \n Purchase A Ticket\n\n \n \n \n \n \n \n \n \n\n \n\n \n \n\n \n Become A Sponsor URL:https://vhl.org/vhla-event/vhl-alliance-medical-symposium/ LOCATION:Hyatt Regency Boston/Cambridge\, 575 Memorial Drive\, Cambridge\, MA\, 02139\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/04/iStock-801296936-copy.jpg END:VEVENT END:VCALENDAR