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X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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TZID:America/New_York
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DTSTART:20230312T070000
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DTSTART:20231105T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230710T200000
DTEND;TZID=America/New_York:20230710T210000
DTSTAMP:20260429T214921
CREATED:20230320T190456Z
LAST-MODIFIED:20230320T190456Z
UID:10000029-1689019200-1689022800@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/july-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-your-happiness.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230712T193000
DTEND;TZID=America/New_York:20230712T203000
DTSTAMP:20260429T214921
CREATED:20230328T165712Z
LAST-MODIFIED:20230328T165712Z
UID:10000043-1689190200-1689193800@vhl.org
SUMMARY:July Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/july-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/What-has-VHL-taught-you.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230717T200000
DTEND;TZID=America/New_York:20230717T210000
DTSTAMP:20260429T214921
CREATED:20230320T183811Z
LAST-MODIFIED:20230329T172001Z
UID:10000021-1689624000-1689627600@vhl.org
SUMMARY:July Parents of VHL Patients Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/july-parents-of-vhlers-call/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/increase-your-wellbeing-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230720T190000
DTEND;TZID=America/New_York:20230720T203000
DTSTAMP:20260429T214921
CREATED:20230607T155758Z
LAST-MODIFIED:20230714T134348Z
UID:10000059-1689879600-1689885000@vhl.org
SUMMARY:VHL 101 / Research Update Info Session
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/new-patient-caregiver-cohort-program/
LOCATION:Zoom / Online
CATEGORIES:Workshop
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/01/new-patient-cohort-image.jpg
END:VEVENT
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