BEGIN:VCALENDAR
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PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
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DTSTART:20231105T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230804
DTEND;VALUE=DATE:20230807
DTSTAMP:20260618T183637
CREATED:20230418T193158Z
LAST-MODIFIED:20230720T124142Z
UID:10000054-1691107200-1691366399@vhl.org
SUMMARY:2023 Annual VHL Family Weekend
DESCRIPTION:The 2023 Annual VHL Family Weekend is Coming… Register Today!\nThe VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning\, community building\, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers\, engaging in smaller group sessions to connect\, and thinking about new ways to build the VHL Alliance community\, we are excited to launch this event for 2023. There are some recent shifts and changes\, and the time of year is slightly different\, so we want to make sure everyone has the chance to mark their calendars\, make arrangements and gather together for this year’s Family Weekend. \n  \nHere are a few highlights of the 2023 event: \n  \nDates: August 4-6\, 2023 \n  \nLocation: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville\, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here.  \n  \nHotel Contact Information:2555 West End AvenueNashville\, TN 37203Phone: 615-321-1300 \n  \nWhat are the parking options at Nashville Marriott at Vanderbilt University?The parking options at Nashville Marriott at Vanderbilt University are:Valet: Daily: $45Large vehicles or vehicles with trailers are subject to $150 daily fee\, scheduled 3 days in advance \n  \nHere is a brief recap of the weekend’s schedule: \n  \nFriday\, August 4\, 2023 \n– VHLA Board of Directors Meeting \n– VHL Family Weekend Community Evening (dinner) – more to come! \n  \nSaturday\, August 5\, 2023 \n– Welcome ceremony: Vanderbilt and Nashville \n– Fireside Chat: Dr. Kim Rathmell\, Dr. Debra Friedman\, and Dr. Dan Barocas. Moderated by Katy Beckermann  \n– State of the VHL Alliance Presentation  \n– Neurologic Implications of VHL presentation by Dr. Alexander Mohler\, Vanderbilt Medical Center \n– VHL Care Financial Checkup\, presented by Tim Reid\, Lead Financial Advisor\, Vanderbilt Ingram Cancer Center \n– Small group connections and networking discussions. Coffee and ice cream included!  \n– VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville! \n  \nSunday\, August 6\, 2023 \n– On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! Click here to register and create a fundraising page. 
URL:https://vhl.org/vhla-event/2023-annual-vhl-family-weekend/
LOCATION:Vanderbilt University\, 2555 West End Avenue\, Nashville\, TN\, 37203\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/04/2023-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230806T090000
DTEND;TZID=America/New_York:20230806T110000
DTSTAMP:20260618T183637
CREATED:20230720T123635Z
LAST-MODIFIED:20230720T123707Z
UID:10000064-1691312400-1691319600@vhl.org
SUMMARY:Family Weekend Fun Walk / Run
DESCRIPTION:Join us in Nashville for a Family Friendly fun walk! \n  \nOn Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am\, and will conclude with a brunch for all participants! \n  \nWe’re encouraging walkers to: \n  \n– Create a fundraising page to solicit donations ahead of family weekend \n  \n– Wear blue the day of the event \n  \nClick here to register for the walk and create your fundraising page!
URL:https://vhl.org/vhla-event/family-weekend-fun-walk-run/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/07/iStock-907273480.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230807T200000
DTEND;TZID=America/New_York:20230807T210000
DTSTAMP:20260618T183637
CREATED:20230320T190604Z
LAST-MODIFIED:20230320T190604Z
UID:10000030-1691438400-1691442000@vhl.org
SUMMARY:Aug Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn to understand what truly matters to you and create a plan to create an incredibly rich life-despite all that VHL entails. \n  \nIf you would like to join the call list\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:https://vhl.org/vhla-event/aug-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/understand-what-truly-matters-to-you.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230809T193000
DTEND;TZID=America/New_York:20230809T203000
DTSTAMP:20260618T183637
CREATED:20230328T165831Z
LAST-MODIFIED:20230328T165831Z
UID:10000044-1691609400-1691613000@vhl.org
SUMMARY:August Low/No Vision Call
DESCRIPTION:Second Wednesday of every month \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic\n“How does blindness add to mental health challenges? What practices\, courses\, books\, etc. have you found helpful?”\n \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \n \n\n\n\n\n* indicates required\nEmail Address *\n\n\n\nFirst Name *\n\n\n\nLast Name *\n\n\n\n\nAddress \n\nAddress Line 2\n\n\nCity\n\nState/Province/Region\n\nPostal / Zip Code\n\n\nCountry\nUSAAaland IslandsAfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntigua And BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Saint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBrunei DarussalamBulgariaBurkina FasoBurundiCambodiaCameroonCanadaCape VerdeCayman IslandsCentral African RepublicChadChileChinaChristmas IslandColombiaComorosCongoCook IslandsCosta RicaCote D’IvoireCroatiaCubaCuracaoCyprusCzech RepublicDemocratic Republic of the CongoDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuyanaHaitiHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJersey (Channel Islands)JordanKazakhstanKenyaKiribatiKuwaitKyrgyzstanLao People’s Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacauMacedoniaMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMoldova\, Republic ofMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNepalNetherlandsNetherlands AntillesNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth KoreaNorwayOmanPakistanPalauPalestinePanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalQatarRepublic of KosovoReunionRomaniaRussiaRwandaSaint Kitts and NevisSaint LuciaSaint MartinSaint Vincent and the GrenadinesSamoa (Independent)San MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth KoreaSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan Mayen IslandsSwazilandSwedenSwitzerlandSyriaTaiwanTajikistanTanzaniaThailandTimor-LesteTogoTongaTrinidad and TobagoTunisiaTurkeyTurkmenistanTurks & Caicos IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUruguayUzbekistanVanuatuVatican City State (Holy See)VenezuelaVietnamVirgin Islands (British)Virgin Islands (U.S.)Western SaharaYemenZambiaZimbabwe\n\nPhone Number \n\n\n\nWhat call would you like to join?  \n\n\nPatient / Caregiver Call\n\nParents of VHLers Call\n\nLow / No Vision Call\n\n 
URL:https://vhl.org/vhla-event/aug-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2023/03/blindness-and-mental-health.jpg
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