BEGIN:VCALENDAR
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PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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X-Robots-Tag:noindex
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BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
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BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240708T200000
DTEND;TZID=America/New_York:20240708T210000
DTSTAMP:20260618T064207
CREATED:20240605T165737Z
LAST-MODIFIED:20240618T154403Z
UID:10000073-1720468800-1720472400@vhl.org
SUMMARY:July Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n*This call is delayed one week to accommodate a scheduling conflict with our facilitator.  \n  \nCall topic:\nNavigating the grief that can come with having a chronic illness. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/july-patient-caregiver-call-2024/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/July-1st-Navigating-Grief-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240710T193000
DTEND;TZID=America/New_York:20240710T203000
DTSTAMP:20260618T064207
CREATED:20240605T172129Z
LAST-MODIFIED:20240605T172129Z
UID:10000085-1720639800-1720643400@vhl.org
SUMMARY:July Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \n“As a person living with blindness or low vision\, how do you perceive the world differently from sighted people? What are the drawbacks and what are the benefits of your different perceptions?” \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \nIf you would like to join the call list please click here to register.
URL:https://vhl.org/vhla-event/july-low-no-vision-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/JULY-10-How-do-you-perceive-the-world-differently-vs.-people-with-sight.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240715T200000
DTEND;TZID=America/New_York:20240715T210000
DTSTAMP:20260618T064207
CREATED:20240605T193037Z
LAST-MODIFIED:20240605T193523Z
UID:10000097-1721073600-1721077200@vhl.org
SUMMARY:July Parents of VHL Patients Call
DESCRIPTION:Third Monday of every other month. \nPlease join us on the third Monday every other month to discuss how we can help our children thrive with VHL. \n  \nOur topic\n“Dealing with Uncertainty” \n  \nAll parents of VHL patients are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the third Monday of every other month at 8 PM ET. If you would like to join the call\, please fill out the form below. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/july-parents-of-vhl-patients-call-2024/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/July-21-Dealing-with-uncertainty.jpg
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