BEGIN:VCALENDAR VERSION:2.0 PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:VHL Alliance X-ORIGINAL-URL:https://vhl.org X-WR-CALDESC:Events for VHL Alliance REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20240310T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20241103T070000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/Chicago:20240906T170000 DTEND;TZID=America/Chicago:20240908T140000 DTSTAMP:20260618T041759 CREATED:20240201T160650Z LAST-MODIFIED:20240829T211256Z UID:10000067-1725642000-1725804000@vhl.org SUMMARY:Family Weekend 2024 | Dallas\, TX DESCRIPTION:**Please note: You must register with the registration link below in order to attend!**\n  \nJoin us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! \n  \nImmerse yourself in a community of strength as we come together to share our VHL experience\, build lasting connections\, and learn directly from VHL experts. \n  \n\nUT Southwestern will serve as the backdrop for a series of engaging events\, informative sessions\, and collaborative activities. Experts in VHL research and treatment will be on hand to provide valuable insights & presentations for the VHL Community. More details on the weekend agenda will be available soon!\nConnect with fellow VHL families\, forming bonds that extend beyond the weekend. Share experiences\, exchange advice\, and connect with a supportive network that understands the VHL experience.\nEngage with expert speakers\, participate in interactive workshops\, and gain a deeper understanding of the latest advancements in VHL research and treatment. This weekend aims to equip you with the tools to navigate the challenges of VHL with confidence.\nBeyond the informative sessions\, indulge in family-friendly activities & entertainment in Dallas. We’ll share more details about additional activities soon!\nSecure your spot today for the VHL Alliance Family Weekend at UT Southwestern for $50 today. \n\n  \nWe have secured a block of rooms at a discounted rate at the Canopy Dallas Uptown. Click here to contact the hotel to secure the discounted rate – Rooms are limited\, so we’d recommend reserving your place soon! \n  \n*Event registration fee waivers are available for those who quality. Email us at info@vhl.org to learn more.  \n**Please note that every person who plans to attend Family Weekend must register individually! \n \n Register Now\n \n \n Previous\n Next URL:https://vhl.org/vhla-event/family-weekend-2024/ LOCATION:UT Southwestern\, 5201 Harry Hines Blvd\, Dallas\, TX\, 75235\, United States CATEGORIES:In Person Event ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/02/Family-Weekend-Promo-1-1.jpg ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240909T200000 DTEND;TZID=America/New_York:20240909T210000 DTSTAMP:20260618T041759 CREATED:20240605T170630Z LAST-MODIFIED:20240605T170630Z UID:10000075-1725912000-1725915600@vhl.org SUMMARY:September Patient/Caregiver Call DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. Please note that this call has been delayed one week due to Labor Day.  \n  \nCall topic:\nIncrease your wellbeing by increasing your sense of happiness despite extremely stressful circumstances. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/sept-patient-caregiver-call-2024/ LOCATION:Zoom / Online CATEGORIES:VHL Patient/Caregiver Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Sept-9th-Increase-your-sense-of-happiness.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240911T193000 DTEND;TZID=America/New_York:20240911T203000 DTSTAMP:20260618T041759 CREATED:20240605T173304Z LAST-MODIFIED:20240605T173304Z UID:10000087-1726083000-1726086600@vhl.org SUMMARY:September Low/No Vision Call DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \n“How do we maintain our physical health with VHL and vision loss?” \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \nIf you would like to join the call list please click here to register. URL:https://vhl.org/vhla-event/sept-low-no-vision-call-2024/ LOCATION:Zoom / Online CATEGORIES:Low/No Vision Monthly Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Sept-11-How-do-we-maintain-our-physical-health-despite-vhl-and-vision-loss.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20240916T200000 DTEND;TZID=America/New_York:20240916T210000 DTSTAMP:20260618T041759 CREATED:20240605T193648Z LAST-MODIFIED:20240606T172411Z UID:10000098-1726516800-1726520400@vhl.org SUMMARY:September Parents of VHL Patients Call DESCRIPTION:Third Monday of every other month. \nPlease join us on the third Monday every other month to discuss how we can help our children thrive with VHL. \n  \nOur topic\n“Find out how what you believe about VHL and its impact on you can increase or decrease your child’s health outcomes and what you can do about it.” \n  \nAll parents of VHL patients are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the third Monday of every other month at 8 PM ET. If you would like to join the call\, please fill out the form below. \n  \nIf you would like to join the call list please click here to register. \n  URL:https://vhl.org/vhla-event/sept-parents-of-vhl-patients-call-2024/ LOCATION:Zoom / Online CATEGORIES:Parents of VHL Patients Call ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Sept-15-how-your-beliefs-can-impact-your-childs-health-outcomes.jpg END:VEVENT END:VCALENDAR