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X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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TZID:America/New_York
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DTSTART:20250309T070000
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DTSTART:20251102T060000
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DTSTART;TZID=America/New_York:20250203T200000
DTEND;TZID=America/New_York:20250203T210000
DTSTAMP:20260406T024523
CREATED:20240605T171144Z
LAST-MODIFIED:20240605T171144Z
UID:10000080-1738612800-1738616400@vhl.org
SUMMARY:February Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn three ways to be more resilient. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/feb-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Feb-3rd-Three-ways-to-be-more-resilient.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250212T193000
DTEND;TZID=America/New_York:20250212T203000
DTSTAMP:20260406T024523
CREATED:20240605T173959Z
LAST-MODIFIED:20240605T173959Z
UID:10000092-1739388600-1739392200@vhl.org
SUMMARY:February Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \n“What two things does blindness make most difficult for you and what workarounds have you found for them?” \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \nIf you would like to join the call list please click here to register.
URL:https://vhl.org/vhla-event/feb-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Feb-12-What-two-things-does-blindness-make-most-difficult-for-you.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250303
DTSTAMP:20260406T024523
CREATED:20241113T150928Z
LAST-MODIFIED:20241113T154814Z
UID:10000105-1740700800-1740959999@vhl.org
SUMMARY:VHL Alliance Young Adult Retreat | Phoenix\, AZ
DESCRIPTION:  \nCalling all young adults (ages 21-36) impacted by VHL! Join us in Phoenix\, Arizona\, from February 28th to March 2nd\, 2025\, for the Young Adult Retreat hosted by the VHL Alliance in partnership with the Mayo Clinic in Scottsdale. This weekend is designed for young adults with VHL to connect\, learn\, and build a supportive community. \n  \nThroughout the weekend you’ll have the chance to engage directly with VHL experts\, gain insights into the latest in VHL care\, and connect with other young adults who understand the unique challenges of living with VHL. Whether it’s through educational sessions\, group discussions\, or casual conversations\, this event is crafted to empower and inspire you. \n  \nThis year\, our focus will shift from medical presentations to exploring the psychosocial side of living with VHL. The Young Adult Retreat will feature facilitated group discussions\, engaging workshops\, and supportive sessions that dive into topics like resilience\, coping strategies\, navigating insurance coverage\, and building a balanced life with VHL. It’s an opportunity to share experiences\, ask questions\, and gain a deeper understanding of how to thrive both personally and socially. Detailed schedule and lodging information to come soon! \n  \nRegistration Details\nThe registration fee is $75 and covers all accommodations\, meals\, and activities for the weekend. Financial assistance is available for travel costs through our scholarship program—simply reach out to Josh Mann at josh.mann@vhl.org to learn more. \n  \nClick here to register!
URL:https://vhl.org/vhla-event/vhl-alliance-young-adult-retreat-phoenix-az/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/11/YAR-2025-Promo-Image.jpg
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