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X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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DTSTART:20250309T070000
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DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250303
DTSTAMP:20260406T013630
CREATED:20241113T150928Z
LAST-MODIFIED:20241113T154814Z
UID:10000105-1740700800-1740959999@vhl.org
SUMMARY:VHL Alliance Young Adult Retreat | Phoenix\, AZ
DESCRIPTION:  \nCalling all young adults (ages 21-36) impacted by VHL! Join us in Phoenix\, Arizona\, from February 28th to March 2nd\, 2025\, for the Young Adult Retreat hosted by the VHL Alliance in partnership with the Mayo Clinic in Scottsdale. This weekend is designed for young adults with VHL to connect\, learn\, and build a supportive community. \n  \nThroughout the weekend you’ll have the chance to engage directly with VHL experts\, gain insights into the latest in VHL care\, and connect with other young adults who understand the unique challenges of living with VHL. Whether it’s through educational sessions\, group discussions\, or casual conversations\, this event is crafted to empower and inspire you. \n  \nThis year\, our focus will shift from medical presentations to exploring the psychosocial side of living with VHL. The Young Adult Retreat will feature facilitated group discussions\, engaging workshops\, and supportive sessions that dive into topics like resilience\, coping strategies\, navigating insurance coverage\, and building a balanced life with VHL. It’s an opportunity to share experiences\, ask questions\, and gain a deeper understanding of how to thrive both personally and socially. Detailed schedule and lodging information to come soon! \n  \nRegistration Details\nThe registration fee is $75 and covers all accommodations\, meals\, and activities for the weekend. Financial assistance is available for travel costs through our scholarship program—simply reach out to Josh Mann at josh.mann@vhl.org to learn more. \n  \nClick here to register!
URL:https://vhl.org/vhla-event/vhl-alliance-young-adult-retreat-phoenix-az/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/11/YAR-2025-Promo-Image.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250303T200000
DTEND;TZID=America/New_York:20250303T210000
DTSTAMP:20260406T013630
CREATED:20240605T171257Z
LAST-MODIFIED:20240605T171257Z
UID:10000081-1741032000-1741035600@vhl.org
SUMMARY:March Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn mindfulness techniques that reduce persistent pain (physically or mentally) and create a sense of peace and control. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/mar-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/March-3-Learn-mindfulness-techniques-to-reduce-constant-pain.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250312T193000
DTEND;TZID=America/New_York:20250312T203000
DTSTAMP:20260406T013630
CREATED:20240605T174126Z
LAST-MODIFIED:20240605T174126Z
UID:10000093-1741807800-1741811400@vhl.org
SUMMARY:March Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \n“How do blindness and VHL affect our closest relationships? It can seem like our bodies\, and therefore our needs and abilities\, are constantly changing. How does that change our relationships with those closest to us: spouses\, parents\, children\, etc.?” \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \nIf you would like to join the call list please click here to register.
URL:https://vhl.org/vhla-event/march-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/March-12-How-does-blindness-and-VHL-effect-our-closest-relationships.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250317T200000
DTEND;TZID=America/New_York:20250317T210000
DTSTAMP:20260406T013630
CREATED:20240605T194005Z
LAST-MODIFIED:20240605T194025Z
UID:10000101-1742241600-1742245200@vhl.org
SUMMARY:March Parents of VHL Patients Call
DESCRIPTION:Third Monday of every other month. \nPlease join us on the third Monday every other month to discuss how we can help our children thrive with VHL. \n  \nOur topic\n“Creating healthy relationships with good communication skills.” \n  \nAll parents of VHL patients are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the third Monday of every other month at 8 PM ET. If you would like to join the call\, please fill out the form below. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/march-parents-of-vhl-patients-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Parents of VHL Patients Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/Mar-16-Creating-healthy-relationships-with-good-communication-skills.jpg
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