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X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20250309T070000
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DTSTART:20251102T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250602T200000
DTEND;TZID=America/New_York:20250602T210000
DTSTAMP:20260405T214405
CREATED:20240605T171608Z
LAST-MODIFIED:20240605T171608Z
UID:10000084-1748894400-1748898000@vhl.org
SUMMARY:June Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nLearn how to ask for help with less guilt from health care providers and loved ones \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/june-patient-caregiver-call-2025/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/June-2-Learn-how-to-ask-for-help-with-less-guilt.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250609T190000
DTEND;TZID=America/New_York:20250609T190000
DTSTAMP:20260405T214405
CREATED:20250521T141328Z
LAST-MODIFIED:20250527T190641Z
UID:10000110-1749495600-1749495600@vhl.org
SUMMARY:Charla Informativa con Dr. Alejandro Sanchez sobre Von Hippel-Lindau\, con Preguntas y Respuestas  | VHL Informational Session and Q&A with Dr. Alejandro Sanchez [IN SPANISH]
DESCRIPTION:English description to follow!  \n  \n¡Hola\, miembros de la comunidad de VHLA! \n  \nNos complace anunciar que la Alianza VHL y el Dr. Alejandro Sánchez\, del Instituto Oncológico Huntsman\, ofrecerán un seminario web el 9 de junio de 2025 a las 19:00 h (hora del este). El Dr. Sánchez abordará todos los temas relacionados con la VHL\, desde los fundamentos hasta el tratamiento\, y desde la vigilancia hasta la investigación. El seminario web se realizará en español\, con subtítulos en inglés disponibles en Zoom. \n  \nTambién habrá tiempo para algunas preguntas\, que se pueden dirigir a paula.hernandez@vhl.org con el asunto: Preguntas y respuestas\, Dr. Sánchez. \n  \nNOTAR: el Dr. Sánchez no ofrecerá asesoramiento médico durante esta sesión. \n  \nREGISTRO \n  \n\n  \nHello VHLA Community Members! \n  \nWe are so excited to share the VHL Alliance and Dr. Alejandro Sanchez\, MD\, of the Huntsman Cancer Institute\, will host a webinar on June 9\, 2025\, at 7:00 pm EST. Dr. Sanchez will discuss all things VHL\, from basics to treatment\, and surveillance to research. The webinar will be conducted in Spanish\, with English subtitles available on Zoom. \n  \nThere will also be time for a few questions\, and you may direct those to paula.hernandez@vhl.org with the subject line: Q&A Dr Sanchez. \n  \nNOTE: Dr. Sanchez will not be giving medical advice during this session. \n  \nRegister here \n  \nThis webinar is brought to you with support from:  \n 
URL:https://vhl.org/vhla-event/charla-informativa-con-dr-alejandro-sanchez-sobre-von-hippel-lindau-con-preguntas-y-respuestas-vhl-informational-session-and-qa-with-dr-alejandro-sanchez-in-spanish/
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/05/Spanish-webinar-promo-image.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250611T193000
DTEND;TZID=America/New_York:20250611T203000
DTSTAMP:20260405T214405
CREATED:20240605T174457Z
LAST-MODIFIED:20240605T174457Z
UID:10000096-1749670200-1749673800@vhl.org
SUMMARY:June Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \n“What are your worries related to VHL/vision loss and how do you handle them?” \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. If you would like to join the call\, please fill out the form below. \n  \nIf you would like to join the call list please click here to register.
URL:https://vhl.org/vhla-event/june-low-no-vision-call-2025/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2024/06/June-11-What-are-your-worries-related-to-VHL-_-vision-loss-and-how-do-you-handle-them.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250614T090000
DTEND;TZID=America/New_York:20250614T130000
DTSTAMP:20260405T214405
CREATED:20250429T084039Z
LAST-MODIFIED:20250502T143416Z
UID:10000109-1749891600-1749906000@vhl.org
SUMMARY:VHL Connect | Mass General
DESCRIPTION:
URL:https://vhl.org/vhla-event/vhl-connect-mass-general/
LOCATION:Mass General\, 185 Cambridge St\, Boston\, MA\, 02114\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2025/04/vhl-connect-boston.jpg
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