BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20260308T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20261101T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260302T200000
DTEND;TZID=America/New_York:20260302T210000
DTSTAMP:20260524T213516
CREATED:20260108T162704Z
LAST-MODIFIED:20260108T162704Z
UID:10000129-1772481600-1772485200@vhl.org
SUMMARY:March 2nd Patient/Caregiver Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/march-2nd-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/March-2nd-2026-Pain-Management-Symptom-Supprt.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260311T193000
DTEND;TZID=America/New_York:20260311T203000
DTSTAMP:20260524T213516
CREATED:20260113T151857Z
LAST-MODIFIED:20260113T151857Z
UID:10000135-1773257400-1773261000@vhl.org
SUMMARY:March 11th Low/No Vision Call
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/mar-11th-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/march-11th-household-management-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260321T090000
DTEND;TZID=America/Los_Angeles:20260321T120000
DTSTAMP:20260524T213516
CREATED:20260126T170233Z
LAST-MODIFIED:20260303T193637Z
UID:10000140-1774083600-1774094400@vhl.org
SUMMARY:VHL Connect | Seattle
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease. \n \n When: August 7-9\, 2026 \n \n Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States \nClick here to secure a discounted room at the Everly Hotel. \n \n Registration Link: Click here to secure your spot today! \n \n What to Expect: \n\nEducational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.\nCommunity Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.\nInteractive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.\nKid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.\nA dedicated Young Adult track for VHLers between the ages of 21 and 35\n\n Who Should Attend: \n\nIndividuals and families living with VHL\nMedical professionals and researchers\nCaregivers\, advocates\, and supporters\n\n Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.  Travel scholarships are available for this event\, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!  \n \nEarly bird tickets are available for only $25 if you register before June 1st\, 2026! \n*Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/vhl-connect-seattle/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Family-Weekend-2025-Promo-University-of-Michigan-7.jpg
END:VEVENT
END:VCALENDAR