BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20260308T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20261101T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260302T200000
DTEND;TZID=America/New_York:20260302T210000
DTSTAMP:20260405T125426
CREATED:20260108T162704Z
LAST-MODIFIED:20260108T162704Z
UID:10000129-1772481600-1772485200@vhl.org
SUMMARY:March 2nd Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nPain Management and Symptom Support\nPractical tools for coping with physical symptoms\, fatigue\, or pain\, and ways you and your caregivers can support day-to-day comfort and quality of life. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/march-2nd-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/March-2nd-2026-Pain-Management-Symptom-Supprt.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260311T193000
DTEND;TZID=America/New_York:20260311T203000
DTSTAMP:20260405T125426
CREATED:20260113T151857Z
LAST-MODIFIED:20260113T151857Z
UID:10000135-1773257400-1773261000@vhl.org
SUMMARY:March 11th Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nHousehold management: How do you do Home upkeep and maintenance? If you do it yourself\, how? If you use outside resources\, what are they\, and how did you find them? For example\, some of the chores might be small repairs\, shoveling snow\, yard maintenance\, etc. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register.
URL:https://vhl.org/vhla-event/mar-11th-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/march-11th-household-management-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260321T090000
DTEND;TZID=America/Los_Angeles:20260321T120000
DTSTAMP:20260405T125426
CREATED:20260126T170233Z
LAST-MODIFIED:20260303T193637Z
UID:10000140-1774083600-1774094400@vhl.org
SUMMARY:VHL Connect | Seattle
DESCRIPTION:  \nJoin us for VHL Connect: Seattle on March 21st\, 2026! \n  \nDate: March 21st\, 2026 \nCost: $10 \nLocation: 255 South King Street\, 18th floor\, Seattle\, WA\, 98104. We will be in Slalom Hawk Tower on the 18th floor\, which is where the reception area is located. Note that there is a hotel connected to the building which can make locating the office part of the building a little confusing. The elevator bank for the offices is in the middle of the building lobby\, across from the waterfall sculpture. \nSchedule: 9:00 AM – Noon PST. \n  \nJoin us for a day of presentations on current VHL Research and treatment options\, along with the opportunity to meet with leading VHL Clinicians. Registration will open at 8:30 am! Lunch is included! \n  \nClick here to register now: https://vhl.app.neoncrm.com/np/clients/vhl/event.jsp?event=86& \n 
URL:https://vhl.org/vhla-event/vhl-connect-seattle/
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/Family-Weekend-2025-Promo-University-of-Michigan-7.jpg
END:VEVENT
END:VCALENDAR