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X-WR-CALDESC:Events for VHL Alliance
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DTSTART;TZID=America/New_York:20260706T200000
DTEND;TZID=America/New_York:20260706T210000
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UID:10000133-1783368000-1783371600@vhl.org
SUMMARY:July 6th Patient/Caregiver Call
DESCRIPTION:First Monday of every month. \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the first Monday of every month at 8 PM ET. \n  \nCall topic:\nFinancial and Practical Planning\nAddressing work\, insurance\, medical bills\, disability resources\, and other practical challenges. \n  \nIf you would like to join the call list please click here to register. \n 
URL:https://vhl.org/vhla-event/july-6-patient-caregiver-call/
LOCATION:Zoom / Online
CATEGORIES:VHL Patient/Caregiver Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/July-6-2026-Financial-Practical-Planning.jpg
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DTSTART;TZID=America/New_York:20260708T193000
DTEND;TZID=America/New_York:20260708T203000
DTSTAMP:20260113T152523Z
CREATED:20260113T152523Z
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UID:10000139-1783539000-1783542600@vhl.org
SUMMARY:July 8th Low/No Vision Call
DESCRIPTION:Second Wednesday of every month. \n  \nLiving with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. \n  \nOur call topic:\n \nWhat mental health practices have you found both successful and accessible? What practices do you wish were accessible but aren’t? \n  \nAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other related topics. We look forward to another thoughtful discussion! \n  \nThis facilitated call takes place on the 2nd Wednesday of every month at 7:30 PM ET. \n  \nIf you would like to join the call list please click here to register.
URL:https://vhl.org/vhla-event/july-8th-low-no-vision-call/
LOCATION:Zoom / Online
CATEGORIES:Low/No Vision Monthly Call
ATTACH;FMTTYPE=image/jpeg:https://vhl.org/wp-content/uploads/2026/01/july-8th-mental-health-scaled.jpg
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DTSTART;TZID=America/New_York:20260730T190000
DTEND;TZID=America/New_York:20260730T200000
DTSTAMP:20260716T132503Z
CREATED:20260715T143414Z
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UID:10000157-1785438000-1785441600@vhl.org
SUMMARY:VHL Veterans Panel
DESCRIPTION:  \nJoin the VHL Alliance on Thursday\, July 30\, at 7:00 p.m. ET for the VHL Veterans Panel. \n  \nThis webinar will feature longtime members of the VHL community sharing their personal journeys with Von Hippel-Lindau disease. Panelists will reflect on the lessons they have learned\, the challenges they have faced\, and the importance of self-advocacy when navigating care and living with VHL. \n  \nWhether you are newly diagnosed or have been part of the VHL community for years\, this conversation will offer valuable insight\, encouragement\, and connection. \n  \nRegister today: https://us02web.zoom.us/meeting/register/sQgndVM2RIO9yzeW2i8AcQ#/registration \n  \nThis webinar is brought to you with support from:  \n 
URL:https://vhl.org/vhla-event/vhl-veterans-panel-july/
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/07/VHL-101-Research-Update-with-Othon-Iliopoulos-MD-8.png
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