BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//VHL Alliance - ECPv6.13.2.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:VHL Alliance
X-ORIGINAL-URL:https://vhl.org
X-WR-CALDESC:Events for VHL Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260807T170000
DTEND;TZID=America/New_York:20260809T143000
DTSTAMP:20260428T135840
CREATED:20260428T145054Z
LAST-MODIFIED:20260428T145854Z
UID:10000144-1786122000-1786285800@vhl.org
SUMMARY:Family Weekend 2026
DESCRIPTION:The VHL Alliance invites you to join us for our annual Family Weekend\, a unique opportunity to connect with the VHL community\, hear from leading experts\, and share experiences with others impacted by von Hippel-Lindau (VHL) disease.   When: August 7-9\, 2026   Where: Kimpton Everly Hotel1800 Argyle Ave\, Los Angeles\, California 90028 United States Click here to secure a discounted room at the Everly Hotel.   Registration Link: Click here to secure your spot today!   What to Expect: Educational Sessions: Learn the latest in VHL research\, treatments\, and patient care from top medical professionals.Community Building: Meet and bond with families\, patients\, caregivers\, and supporters of the VHL community.Interactive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.Kid-Friendly Activities: Fun\, supervised programs for children\, making this event enjoyable for all ages.A dedicated Young Adult track for VHLers between the ages of 21 and 35  Who Should Attend: Individuals and families living with VHLMedical professionals and researchersCaregivers\, advocates\, and supporters  Whether this is your first Family Weekend or you join us every year\, Family Weekend always promises to inspire\, inform\, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.   Early bird tickets are available for only $25 if you register before June 1st\, 2026! *Please note that every attendee must register for a ticket to secure their spot* 								\n				\n				\n				\n									\n					\n						\n									Register Now!
URL:https://vhl.org/vhla-event/family-weekend-2026/
LOCATION:Kimpton Everly Hotel\, 1800 Argyle Ave\, Los Angeles\, 90028\, United States
CATEGORIES:In Person Event
ATTACH;FMTTYPE=image/png:https://vhl.org/wp-content/uploads/2026/04/Screenshot-2026-04-28-at-9.46.37-AM.png
ORGANIZER;CN="VHL Alliance":MAILTO:info@vhl.org
END:VEVENT
END:VCALENDAR