VHL Alliance, Author at VHL Alliance

November 19, 2024

The 16th International VHL Medical Symposium recently took place in Milan, Italy. More than 200 scientists, clinicians, and patient advocates

October 15, 2024

Thank you to our guest contributor this month, Tessa Whitten! There are a few days of the year that I

September 23, 2024

At the VHL Alliance, we are committed to bringing you the latest developments in research and treatment options for Von

August 13, 2024

Here at the VHL Alliance, it’s clear that the financial burden of von Hippel-Lindau continues to be a top priority

May 28, 2024

“I faced a choice—crumble over or get back up.” – Ian Phillips, VHL Community Member Some people, for varying

May 15, 2023

“I give it everything I’ve got. I make the most of it.” – Isaiah Lee Sometimes something remarkable happens in

May 2, 2023

We had the opportunity to speak with a few of our community members to share their stories during VHL Awareness

April 26, 2023

Today marks the first day of VHL Awareness month. Each May, we use this time as a community to connect,