Vision and Mission
VISION: VHLA envisions a cure for VHL
MISSION: VHLA is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.
VHL or von Hippel-Lindau is a genetic form of cancer. VHL patients battle a series of tumors throughout their lives. The VHL gene is involved in many other forms of cancer. Finding a cure for VHL will play a vital role in curing cancer!
I am a physician working with von Hippel-Lindau (VHL) patients and patients with many other genetic diseases. The VHL Alliance is most helpful and best organized genetic support group of any kind. I wish patients with other genetic disorders had a support group as well organized and useful as the VHL Alliance.