• Vision and Mission

    VISION: VHLA envisions a cure for VHL


    MISSION: VHLA is dedicated to research, education, and support to improve diagnosis, treatment, and quality of life for those affected by VHL.
    VHL or von Hippel-Lindau is a genetic form of cancer. VHL patients battle a series of tumors throughout their lives. The VHL gene is involved in many other forms of cancer. Curing VHL is one step closer to curing cancer!

  • Faces of VHL

  • Patient Testimonials

    The VHL Alliance has meant the world to me. Through this alliance I have met friends who can relate to the unique world of VHL. Questions, concerns and ideas about VHL have been through this organization. Many thanks and kudos to VHL Alliance. Truly, you have helped me climb the mountain of VHL.

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    October 18-19, 2014
    Rockville, Maryland

     calendar of events


  • We Want to Hear from You!

    Let us know which VHL education topics interest you! Click here to participate in the survey

    Learn how you can get involved with the VHL Alliance. Volunteers are always needed to help educate and support people with VHL and increase VHL awareness in the general community. Working towards a cure is essential whether it be through medical research, contributing to the tissue bank, becoming a Clinical Care Center, donating, or fundraising on behalf of the VHLA. Contact the VHLA office!

    Annual Appeal 2013

    Help Strengthen Our Alliance for a Cure

    For our family, VHLA was the bond, the connection that helped us navigate a very frightening time in our lives...see full story

    …We know that the cure for cancer IS in our genes and, by strengthening VHLA, we are certain to find a cure.
    Tom Rath Authors New Book: Eat Move Sleep
    #1 New York Times bestselling author, senior scientist and advisor to Gallup, Inc., and VHL patient, Tom Rath authors a new book aimed at improving your health for years to come.
    Read full story

    Information about Affordable Care Act: Health Insurance Coverage

    Enrollment opens October 1, 2013 Read More

    Annual Meeting Slide Sets and Videos
    Are now online - Click Here

    Summary of Presentations
    Are now online - Click Here

    Interested in VOLUNTEERING for the VHL Alliance? Contact the VHLA Office Together we can make a difference!

    VHLA Teams Up with MedicAlert to Help Keep You Safe. Microsoft Word - MAF-VHLFA-Ad copy

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    The VHL Alliance is a tax exempt 503(c)3 corporation
    Last Modified: February 4, 2014

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