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VHL Family Alliance

 

Von Hippel-Lindau (VHL) is a genetic condition causing the abnormal growth of blood vessels. The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. We are dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Lindau disease.

 

The January Challenge!

All donations of $100 or more from now through the end of January will be matched up to $25,000 by the Borg family! Your donations have met the the $30,000 goal in 2008's challenge grant by the Greene, Lusk, and Horwitz families. In 2009, we have a chance to start the new year off right, please tell all your friends and help us earn these grants!

 

        

 

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What's New?
  End-of-year Challenge Grants!
  The Future of Primary Care
  Lost Your Health Insurance?
  November Newsletter Online!
  We need your opinion! Media Usage Survey
  VHL in the News!
  Audio programs - Be a Powerful Patient!
  Travel assistance for treatment and medical meetings
 
  Orlando tribute to Joyce Graff and the 15th Anniversary of VHLFA
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