Video I know what it is The VHL Alliance is constantly striving to increase the level of VHL research. Once considered only “an obscure medical curiosity”, in reality, VHL is becoming one of the most important diseases in the study of cancer. Genetic Research and VHL The condition called VHL is caused by an autosomal dominant gene, since only one altered copy of the VHL gene will cause the condition. Progress Towards a Cure With the VHL gene identified, there is also increased hope of a cure, or at least of better management for VHL. Be Part of Finding a Cure The many advances in VHL research, diagnosis and treatment has resulted in an increased life expectancy of more than 16 years. Yet, despite this progress, a cure for VHL is still in the future.