VHL Alliance

What is ASCO GU? Every year, clinicians and researchers from around the world gather to share the newest discoveries in

For individuals and families living with Von Hippel-Lindau disease (VHL), the journey is often defined by a series of challenges.

Did you know? January is Mental Wellness Month Living with Von Hippel–Lindau (VHL) disease can involve moments of uncertainty, difficult

As we look back on 2025, we’re reminded of how much progress is possible when our community comes together. The

Earlier this month, the VHL Alliance (with generous support from the Rath Family and Merck) hosted its first-ever VHL Research

At the VHL Alliance, one of our top priorities is making sure that people with von Hippel-Lindau disease (VHL) have

Family Planning and VHL: Navigating Choices with Confidence and Care Planning a family is a deeply personal decision. For people