• November 2nd Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • VHL Alliance Medical Symposium

    Hyatt Regency Boston/Cambridge 575 Memorial Drive, Cambridge, MA, United States

    Advancing Research, Treatment, and Care for Von Hippel-Lindau Disease Join leading researchers, clinicians, and advocates for groundbreaking discussions on VHL disease management and innovation. The 17th International VHL Medical Symposium, hosted...

  • Webinar Series: What About What I Need?

      What About What I Need? An honest conversation about getting clear on what you need, asking for what you want, handling loneliness, and navigating the holidays with VHL.  ...

    Free
  • November 18th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day!   Living with low or no vision creates unique challenges for...

    Free
  • December 7th Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • December 9th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day!   Living with low or no vision creates unique challenges for...

    Free
  • VHL Connect: UT Southwestern

    Thompson Family Conference Center 6202 Harry Hines Blvd, Dallas, TX, United States

      Join us in Dallas on December 12th for VHL Connect: UT Southwestern!   Dr. Janie Qin and a moderated panel of VHL specialists will discuss the latest treatment options...

    Free
  • January 4th Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

    Free
  • January 13th Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day!   Living with low or no vision creates unique challenges for...

    Free