12 events found.
Navigating Tough Conversations Workshop
Zoom / OnlineNo one likes conflict. Having VHL can feel very stressful and that can strain relationships, erode healthy communication, and increase the likelihood of conflict. What if you could navigate tough conversations with greater expertise or avoid having conflict? Join this session to discover research-based tools that you can implement immediately to improve...
New Patient / Caregiver Cohort Program
Zoom / OnlineRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
2023 Julie Flynn HOPE Retreat for Young Adults
Washington DC Washington DC, DC, United StatesAre you a young adult with VHL? If so, join other young adults for a weekend of fun and information! We're excited to get together in person after our digital event last year. Participants must cover transportation costs to and from DC. VHLA will cover the cost of lodging, meals, and activities for the weekend....
$100
New Patient / Caregiver Cohort Program
Zoom / OnlineRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
March VHL Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first Monday of...
March Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month Living with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. All are welcome to join—whether you have questions or just want to find out more. There will be time near the...
New Patient / Caregiver Cohort Program
Zoom / OnlineRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
New Patient / Caregiver Cohort Program
Zoom / OnlineRecently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
March Parents of VHL Patients Call
Zoom / OnlineThird Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. All parents of VHLers are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call...
April Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "How do you get outside and take in the warmer days and warm weather activities?"...
April VHL Patient/Caregiver Call
Zoom / OnlineThis call is normally the first Monday of every month - It has been delayed in April due to a scheduling conflict with our facilitator! See you on April 17th. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...