The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning, community building, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers,...
Join us in Nashville for a Family Friendly fun walk! On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am, and will conclude with a brunch for all participants! We're encouraging walkers to: -...
Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate. As a special note and honor to the incredible amount of work that has been achieved, this year will be...
Join us for an empowering and enriching experience at the 2024 Young Adult Retreat! Date: February 23-25, 2024 Timing: Events will start at 7 pm on Feb 23rd and run through midday on Sunday Feb 25th Location: Embassy Suites Washington DC Chevy Chase Pavilion 4300 Military Road NW, Washington, DC 20015 Ages: 21 -...
**Please note: You must register with the registration link below in order to attend!** Join us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! Immerse yourself in a community of strength as we come together to share our VHL experience, build lasting connections, and learn directly from VHL experts. UT Southwestern will...
Join the leading VHL researchers, physicians, and experts in Milan! What: The 16th International VHL Medical Symposium, hosted by the VHL Alliance and the San Raffaele Scientific Institute, will bring scientists, clinicians and advocates together for two days of collaboration, idea exchange, and thought leadership. Where: UniSR Campus Milano Olgettina (Via Olgettina 58, Milan) on...
Calling all young adults (ages 21-36) impacted by VHL! Join us in Phoenix, Arizona, from February 28th to March 2nd, 2025, for the Young Adult Retreat hosted by the VHL Alliance in partnership with the Mayo Clinic in Scottsdale. This weekend is designed for young adults with VHL to connect, learn, and build a...
Can you join us for VHL Family Weekend 2025? When: August 1-3, 2025 Where: University of Michigan, Ann Arbor, MI The VHL Alliance invites you to join us for our annual Family Weekend, a unique opportunity to connect with the VHL community, hear from leading experts, and share experiences with others impacted by...
