Curing Cancer through VHL Research *
We Bring Heart, Soul
& Science To The Fight.
Our Mission
Improving quality of life and health outcomes for VHL patients, families, and caregivers with inclusive community building, connections to excellent education and treatment options, and advancements in medical research.
Backed By
Research.
What is VHL?
VHL is a genetic disease that can cause tumors (benign or malignant) to develop in up to 10 different organs throughout a patient’s life.
Driven By Heart.
Find a Clinical Care Center (CCC)
People with VHL are encouraged to seek care at a VHL CCC, where they have access to a coordinated, multidisciplinary team of experienced VHL medical professionals.
Our Research
Since the VHL gene was first identified in 1993, there have been incredible advances made in our understanding and management of VHL, culminating with the FDA approval of the first ever systemic therapy for the condition. This inspiring progress is the result of years of hard work and dedication by VHL researchers, desperately needed funding for VHL focused research, and active participation in research opportunities by the VHL community.
Get Involved
