Early diagnosis, regular surveillance, appropriate treatment, emotional support, and living a healthy lifestyle are all keys to effectively managing VHL and reducing the negative impacts of the disease.
Care & Treatment
With early detection, active surveillance and appropriate treatment, VHL disease has a better prognosis, or outcome, than many other tumor conditions and cancers. People with VHL as well as individuals who have a family history of VHL are encouraged to seek care from a healthcare team experienced with this complex disease. Continue exploring this section of the website to learn about the manifestations of VHL, where to find clinical care, and all of the support resources we provide for patients and caregivers.