Volunteer
The work of the VHL Alliance wouldn’t be possible without the help of our fabulous volunteers. There are many ways to get involved: Below is a list of some ways that you can help. Please consider sharing your energy and expertise!
For more information about any of these volunteer opportunities, please contact the VHL Alliance and complete:
Fundraiser
Support the VHLA by creating your own event or join one that is already planned. Host a bake sale, join Team VHL in a run/walk, create a virtual event through VHLA’s Peer to Peer fundraising page, or come up with something unique
Regional Ambassadors
The VHLA Ambassador plays a crucial part in the work of the VHL Alliance, dedicated to those affected by VHL through education, support, and research. They help connect patients and caregivers to resources, raise awareness, and act as a mentor for newly diagnosed patients.
Board Member
Board members help steer the ship that is the VHL Alliance. They help with a number of tasks including fundraising, marketing, communications, social media, and finances. Members may serve for two terms (three years per term). Meet our current Board members.
CCC Liaison
Committee Member
General Volunteer
If you are not sure what position is best for you, you may be interested in starting as a general volunteer. General volunteers provide an extra hand on various projects throughout the year. Examples of past volunteer involvement include: helping individuals with low/no vision participate in the patient databank, helping design social media campaigns, calling constituents to encourage participation in annual family weekends, etc. Access and complete the volunteer form to indicate your interest and a VHLA staff member will be in touch with you.