International Resources

Regional VHL Chapters

Asociación Argentina de Familias de Von Hippel,Lindau (AAF,VHL):
Carlos Alberto Fredes, Director
Ciudad: Rio Cuarto (C.P 5800)
Provincia de Córdoba – República Argentina
Phone: +54.9.358.460.1033
Email: [email protected], [email protected]

Affiliate/ Filial:
Provincia de Buenos Aires
Ciudad: Necochea (C.P 7630)
Republica Argentina
Phone: +54 9 358 460-1033
Email: [email protected], [email protected]

New South Wales:
Paul and Gay Verco
16 Government Road
Mona Vale 2103
Phone: +61.2.9999.361
Email: [email protected]

Queensland
Judy Moulynox
3 Griffin Court
Morayfield QLD 4506
0419720865
[email protected]

Dirk Werbrouck
Phone: +32.51.22.70.61
Email: [email protected]
Website: https://www.facebook.com/vonhippellindau.belgie/

Andres & Suhellen Aguero
Phone: +55.21.3629.0023
Email: [email protected]

Canadian VHL Alliance
PO Box 89124, McKenzie Towne
Calgary, AB T2Z 3W1
Phone: 289-314-3047
Email: [email protected]
Website: www.cvhla.ca

Paula Mascayano
Phone: +56-961782275
Email: [email protected]

Vibeke Harbud
Fiskervejen 10
4000 Roskilde
Denmark
Phone: + 45.2611.7033
Email: [email protected]
Website: www.vhl.dk

Association VHL France
Edith Laurent-Lassus
Email: [email protected]
Website: www.vhlfrance.org

VHL.Selbsthilfegruppe:
Gerhard Alsmeier
Rembrandstrasse 2
Meppen
D.49716 Germany
Phone: +49.5931.929552
Email: [email protected]
Website: www.hippel-lindau.de

Köln:
Florian Hofmann
Email: [email protected]

President: Athina Oz Alexandridou
Email: [email protected]; [email protected]
Website: www.vhlgr.org

Dr. Helga Süli.Vargha
H.1518, P.O. Box 32
Budapest 112 Hungary
Fax: +36.1.2090602
Email: [email protected]

Gloria Proby
Phone: +44.808.189.0891
Email: [email protected]
Website: www.vhl-uk-ireland.org

Francesco Lombardi
Corso Siccardi 11
Torino IT.10122 Italy
Phone: +39.(0)347.26.93 543
Email: [email protected]
Website: www.vhl.it

Phone: +81.88.880.2402
Email: [email protected]
Website: www.vhl.japan.org

Edith Godina Herrera
Phone: +521.2222.17.42.70
Email: [email protected]
Website: http://alianzavhlmexico.org.mx/alianza/

Belangenvereniging VHL
Middenmolenlaan 25
2807 DL Gouda
E-mail: [email protected]
Voor vragen over Belangenvereniging VHL
kunt u telefonisch terecht bij de secretaris
van de Belangenvereniging VHL: 0182-515058
http://vonhippellindau.nl/

Greg and Katheryn Johnson
New Zealand
Phone/Fax: +64.21527488
Email: [email protected]

Dr. Wojciech Lubinski, GENETICS
Pomeranian Ac of Medicine
ul.Powstancow Wlkp. 72
Szczecin
70.111 Poland
Phone: +48.91.4661313
Email: [email protected]

Asociatia Bolnavilor de VHL din Romania
Email: [email protected]
Website: http://vhlromania.ro

Dr. Armen Samvelovich Simonyan, MD
Phone: +7(999)4507451
Email: [email protected]
State Research Center
Burnasyan Federal Medical Biophysical Center of the Federal Medical Biological Agency of Russia
Marshal Novikov Street 23
Moscow, Russia, 123098

Markus van Vuuren
Phone: +27.82.779.5019
Email: [email protected]
Dr. Lizette van Rensburg
Phone: +27.(0)12. 319.2636

Karina Villar, MD
Allianza española de familias de von Hippel.Lindau (A.E.F..VHL)
Centro Civic Rogelio Soto.Apartado nº5
C / Campoamor, 93.95
08204 Sabadell – Barcelona
Phone: +34.93.712.3989 ; +34.61.605.0514; +34.60.768.0759
Email: [email protected]
Website: www.alianzavhl.org

England, Scotland, Wales, Northern Ireland:
Email: [email protected]
Tel: +44.808.189.0891
Website: www.vhl-uk-ireland.org

International VHL Hospitals

Hospital Italiano de Buenos Aires, Buenos Aires
Contact, Adults: Valeria de Miguel, MD, Endocrinology, Metabolism and Nuclear Medicine Unit.
Tel: +541149590200, ext: 4849/8442; Fax: +541149590323

E-mail: [email protected]

Contact, Pediatrics: Gabriela Sansó, PhD.
Tel: +5441149635931, ext: 129; Fax: +541149635930
E-mail: [email protected]

Hospital Privado Centro Médico de Córdoba.

Contact: Javier de Arteaga, MD
Tel: +54-351-4688230
E-mail: [email protected]

Prince of Wales Hospital, Sydney

Hereditary Cancer Clinic.
E-mail: [email protected]

Universitair Ziekenhuis Brussel & Free University Brussels
Endocrinology and Internal Medicine
Prof. Dr. Corina Andreescu
Email: [email protected]

Contact: Nino Galasso
Tel: +32(2)4749783

Tel: +32 (2) 801.27.01
Email: [email protected]

BC Cancer Vancouver Cancer Centre VHL Clinic

Tel: (604) 877-6000 ext 2738

Email: [email protected]

 

Toronto General Hospital, Toronto, ON.
Adults: Princess Margaret Cancer Centre, Familial Cancer Clinic
Alexandra Volenik, MSc, CGC, CCGC, Genetic Counsellor
Tel: 1.416.946.2270
Email: [email protected]

 

Pediatrics: Hospital for Sick Children, Cancer Genetics Program
Bailey Gallinger, MSc, CGC, Genetic Counsellor
Tel: 1.416.813.8597
Email: [email protected]

Peking University First Hospital, Beijing
Contact: Gong Kan, MD.,
Tel: +86 (10) 83575101; Fax: +86 (10) 66552211
E-mail: [email protected]
ADULT AND PEDIATRIC

Necker Hospital and Kremlin-Bicêtre Hospital, Paris
Contact: Stéphane Richard, MD
Tel/Fax: +33 (1) 49.59.67.28
E-mail: [email protected]
Website 

Albert-Ludwigs University Medical Center Freiburg
Contact: Mr. Berisha
Tel: +49 (7) 61.270.34560
E-mail: [email protected]

Amrita Institute of Medical Sciences, Elamakkara Post, Kochi, Kerala
Contact: Ashok Pillai, MD
Tel: Fax: + 91.484.280.2020
E-mail: [email protected]

Sheba Medical Center. Ramat Gan
Contact: Prof Amit Tirosh
Tel: +972.3.530.9236
E-mail: [email protected]

IRCCS San Raffaele Hospital, Milan
Contact: Daniela Canibus
Tel: +39 02 2643 5628
E-mail: [email protected]

Kochi Medical School Hospital, Nankoku Kochi.
Contact: Mari Tashiro, Genetic Counselor
Department of Clinical Genetics
Tel: 088.866.5811
E-mail: [email protected]

Kyoto University Hospital – Kyoto, Japan
Contact: Masako Torishima PhD
+81-75-751-4350
Email: [email protected]

University Hospital Utrecht.
Rachel Giles, PhD, Internal Medicine.
E-mail: [email protected]

Pomeranian Academy of Medicine, Szczecin.
Contact: Karol Krzystolik, MD, Genetics.
Tel: ; Fax: +48 (91) 4828.450

E-mail: [email protected]

National Cancer Centre Singapore
Contact: Dr. Joanne Ngeow
Website: https://www.nccs.com.sg/patient-care/specialties-services/cancer-genetics-service
Email: [email protected]

Care for VHL and other genetic conditions in the UK is organized under the local genetics centres. People should begin by contacting their local centre, which will network with the major centres as necessary.

University of Cambridge
Contact: Prof. Eamonn Maher, Dept. of Medical Genetics.
Tel: +44 (0) 1223.217.054 to ring

St. Bartholomew’s Hospital, London
Contact: Ms. L. McAndrew, Neuroendocrine Clinical Nurse Specialist.
Tel: +44 (0) 203.465.7264
Email: [email protected]

Churchill Hospital, Oxford
Regional Genetics Service
Tel: +44 (0) 114.271.7025