The VHL Alliance invites you to join us for our annual Family Weekend, a unique opportunity to connect with the VHL community, hear from leading experts, and share experiences with others impacted by von Hippel-Lindau (VHL) disease.
When: August 7-9, 2026
Where: Kimpton Everly Hotel
1800 Argyle Ave, Los Angeles, California 90028 United States
Click here to secure a discounted room at the Everly Hotel.
Registration Link: Click here to secure your spot today!
What to Expect:
- Educational Sessions: Learn the latest in VHL research, treatments, and patient care from top medical professionals.
- Community Building: Meet and bond with families, patients, caregivers, and supporters of the VHL community.
- Interactive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.
- Kid-Friendly Activities: Fun, supervised programs for children, making this event enjoyable for all ages.
- A dedicated Young Adult track for VHLers between the ages of 21 and 35
Who Should Attend:
- Individuals and families living with VHL
- Medical professionals and researchers
- Caregivers, advocates, and supporters
Whether this is your first Family Weekend or you join us every year, Family Weekend always promises to inspire, inform, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.
Early bird tickets are available for only $25 if you register before June 1st, 2026!
*Please note that every attendee must register for a ticket to secure their spot*
