As we look back on 2025, we’re reminded of how much progress is possible when our community comes together. The steps forward we made this year happened because of people

At the VHL Alliance we’re inspired by members of our community who share their stories to raise awareness for our cause. One of those voices is Julia with One I (Eye). With

We’re proud to launch a new resource designed specifically for the VHL community: the VHL Research Library. Whether you’re living with VHL, supporting a loved one, or simply looking to

This year, in partnership with select VHL Clinical Care Centers, the VHL Alliance is piloting a new program called VHL Connect, an initiative aimed at empowering families affected by von

The landscape of federal funding for biomedical research is shifting rapidly, bringing both opportunities and challenges for VHL researchers. Here’s an update on recent accomplishments and ongoing hurdles:   Major

Disclaimer: The process of applying for disability benefits with VHL disease can vary based on individual circumstances, medical history, and location. This post provides general information and resources but should

Supporting Mental Health in the VHL CommunityAs we kick off the new year, we’re here to remind you of the importance of prioritizing mental and emotional health. Living with von

As we enter 2025, the VHL Alliance is proud to unveil a series of new initiatives aimed at advancing care, education, and support for individuals and families affected by von

The 16th International VHL Medical Symposium recently took place in Milan, Italy. More than 200 scientists, clinicians, and patient advocates attended, sharing valuable insights and research advancements aimed at improving