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The 2023 Annual VHL Family Weekend is Coming… Register Today!

The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning, community building, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers, engaging in smaller group sessions to connect, and thinking about new ways to build the VHL Alliance community, we are excited to launch this event for 2023. There are some recent shifts and changes, and the time of year is slightly different, so we want to make sure everyone has the chance to mark their calendars, make arrangements and gather together for this year’s Family Weekend.


Here are a few highlights of the 2023 event:


Dates: August 4-6, 2023


Location: Nashville Marriott at Vanderbilt University 2555 West End Avenue Nashville, TN 37203 (Adjacent to Vanderbilt University Medical Center). To make hotel reservations with the special VHLA rate of $256 / night please click here. 


Hotel Contact Information:
2555 West End Avenue
Nashville, TN 37203
Phone: 615-321-1300


What are the parking options at Nashville Marriott at Vanderbilt University?
The parking options at Nashville Marriott at Vanderbilt University are:
Valet: Daily: $45
Large vehicles or vehicles with trailers are subject to $150 daily fee, scheduled 3 days in advance


Here is a brief recap of the weekend’s schedule:


Friday, August 4, 2023

– VHLA Board of Directors Meeting

– VHL Family Weekend Community Evening (dinner) – more to come!


Saturday, August 5, 2023

– Welcome ceremony: Vanderbilt and Nashville

– Fireside Chat: Dr. Kim Rathmell, Dr. Debra Friedman, and Dr. Dan Barocas. Moderated by Katy Beckermann 

– State of the VHL Alliance Presentation 

– Neurologic Implications of VHL presentation by Dr. Alexander Mohler, Vanderbilt Medical Center

– VHL Care Financial Checkup, presented by Tim Reid, Lead Financial Advisor, Vanderbilt Ingram Cancer Center

– Small group connections and networking discussions. Coffee and ice cream included! 

– VHL Family Weekend Evening on Your Own – Meet new friends and enjoy Nashville!


Sunday, August 6, 2023

– On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am, and will conclude with a brunch for all participants! Click here to register and create a fundraising page.