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Join us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8!


Immerse yourself in a community of strength as we come together to share our VHL experience, build lasting connections, and learn directly from VHL experts.


  • UT Southwestern will serve as the backdrop for a series of engaging events, informative sessions, and collaborative activities. Experts in VHL research and treatment will be on hand to provide valuable insights & presentations for the VHL Community. More details on the weekend agenda will be available soon!
  • Connect with fellow VHL families, forming bonds that extend beyond the weekend. Share experiences, exchange advice, and connect with a supportive network that understands the VHL experience.
  • Engage with expert speakers, participate in interactive workshops, and gain a deeper understanding of the latest advancements in VHL research and treatment. This weekend aims to equip you with the tools to navigate the challenges of VHL with confidence.
  • Beyond the informative sessions, indulge in family-friendly activities & entertainment in Dallas. We’ll share more details about additional activities soon!
  • Secure your spot today for the VHL Alliance Family Weekend at UT Southwestern for $50 today. 


We have secured a block of rooms at a discounted rate at the Canopy Dallas Uptown. Click here to book your stay – Rooms are limited, so we’d recommend reserving your place soon!


*Event registration fee waivers are available for those who quality. Email us at [email protected] to learn more. 

**Please note that every person who plans to attend Family Weekend must register individually!