The VHL Alliance invites you to join us for our annual Family Weekend, a unique opportunity to connect with the VHL community, hear from leading experts, and share experiences with others impacted by von Hippel-Lindau (VHL) disease.
When: August 7-9, 2026
Where: Kimpton Everly Hotel
1800 Argyle Ave, Los Angeles, California 90028 United States
Click here to secure a discounted room at the Everly Hotel.
Registration Link: Click here to secure your spot today!
What to Expect:
- Educational Sessions: Learn the latest in VHL research, treatments, and patient care from top medical professionals.
- Community Building: Meet and bond with families, patients, caregivers, and supporters of the VHL community.
- Interactive Workshops: Participate in hands-on activities and discussions tailored to help navigate the challenges of living with VHL.
- Kid-Friendly Activities: Fun, supervised programs for children, making this event enjoyable for all ages.
- A dedicated Young Adult track for VHLers between the ages of 21 and 35
Who Should Attend:
- Individuals and families living with VHL
- Medical professionals and researchers
- Caregivers, advocates, and supporters
Whether this is your first Family Weekend or you join us every year, Family Weekend always promises to inspire, inform, and connect. Come be part of a supportive community that understands the unique challenges of living with VHL.
Travel scholarships are available for this event, too. Be sure to mark your scholarship interest on the registration form and our team will be in touch!
Early bird tickets are available for only $25 if you register before June 1st, 2026!
*Please note that every attendee must register for a ticket to secure their spot*
