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September Parents of VHL Patients Call

September 16 @ 8:00 pm - 9:00 pm EDT

Third Monday of every other month.

Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.


Our topic
“Find out how what you believe about VHL and its impact on you can increase or decrease your child’s health outcomes and what you can do about it.”


All parents of VHL patients are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!


This facilitated call takes place on the third Monday of every other month at 8 PM ET. If you would like to join the call, please fill out the form below.


If you would like to join the call list please click here to register.



September 16
8:00 pm - 9:00 pm EDT
Event Category: