Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate. As a special note and honor to the incredible amount of work that has been achieved, this year will be...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Communicating with Medical Professionals" All are welcome to join—whether you have questions or just...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Food and cooking as they relate to blindness" All are welcome to join—whether you...
The VHL Alliance proudly presents the VHL Veterans Panel! Prepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience. Date: November 16th, 2023Time: 7 pm ESTLocation: Zoom. What to Expect: ✨ Courageous Stories:...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic Learn to understand what truly matters to your child and create a plan to create an incredibly rich life-despite all that VHL entails. All...
All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first Monday of every month at...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Holidays and all that comes with them: large gatherings, chores, performances, etc." All are...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "What two things does blindness make most difficult for you and what workarounds have you...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic Creating healthy relationships with good communication skills. All parents of VHLers are welcome to join—whether you have questions or just want to find out...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
