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As we look back on 2025, we’re reminded of how much progress is possible when our community comes together. The

At the VHL Alliance we’re inspired by members of our community who share their stories to raise awareness for our

We’re proud to launch a new resource designed specifically for the VHL community: the VHL Research Library. Whether you’re living

This year, in partnership with select VHL Clinical Care Centers, the VHL Alliance is piloting a new program called VHL

The landscape of federal funding for biomedical research is shifting rapidly, bringing both opportunities and challenges for VHL researchers. Here’s

Disclaimer: The process of applying for disability benefits with VHL disease can vary based on individual circumstances, medical history, and

Supporting Mental Health in the VHL CommunityAs we kick off the new year, we’re here to remind you of the

As we enter 2025, the VHL Alliance is proud to unveil a series of new initiatives aimed at advancing care,

The 16th International VHL Medical Symposium recently took place in Milan, Italy. More than 200 scientists, clinicians, and patient advocates