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Since we last shared an advocacy update, we’ve seen exactly what can happen when the VHL community raises its voice.

Living with von Hippel-Lindau (VHL) disease often means navigating a complex healthcare landscape. Because VHL can impact multiple organ systems,

The VHL Alliance is proud to announce our 2026 research grant recipients. This year, we are excited to support three

As part of VHL Awareness Month, the VHL Alliance is highlighting the many ways that connection, education, and community support

This is a guest post written by Rachel Giles, President of VHL Europa   This year marks something extraordinary for

At the VHL Alliance we’re inspired by members of our community who share their stories to raise awareness for our

We’re proud to launch a new resource designed specifically for the VHL community: the VHL Research Library. Whether you’re living

This year, in partnership with select VHL Clinical Care Centers, the VHL Alliance is piloting a new program called VHL

The landscape of federal funding for biomedical research is shifting rapidly, bringing both opportunities and challenges for VHL researchers. Here’s

Disclaimer: The process of applying for disability benefits with VHL disease can vary based on individual circumstances, medical history, and