Feb Low/No Vision Call
Second Wednesday of every month. Please note that this call is delayed one week due to Valentine's day! Living with low or no vision creates unique challenges for VHL...
12 events found.
Zoom / Online
Events at this venue
Zoom / OnlineFeb Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Jan Parents of VHL Patients Call
Zoom / OnlineThird Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic Creating healthy relationships with good communication skills. All parents of VHLers are welcome to join—whether you have questions or just want to find out...
Jan Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
Jan Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Dec Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Holidays and all that comes with them: large gatherings, chores, performances, etc." All are...
Dec Patient/Caregiver Call
Zoom / OnlineAll are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first Monday of every month at...
Nov Parents of VHL Patients Call
Zoom / OnlineThird Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic Learn to understand what truly matters to your child and create a plan to create an incredibly rich life-despite all that VHL entails. All...
VHL Veterans Panel
Zoom / OnlineThe VHL Alliance proudly presents the VHL Veterans Panel! Prepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience. Date: November 16th, 2023Time: 7 pm ESTLocation: Zoom. What to Expect: ✨ Courageous Stories:...
Nov Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Food and cooking as they relate to blindness" All are welcome to join—whether you...
Nov Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Oct Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Communicating with Medical Professionals" All are welcome to join—whether you have questions or just...
