• Oct Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

  • Sept Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

  • Sept Parents of VHL Patients Call

    Zoom / Online

    Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.   Our topic How to increase positive emotions in your child to lessen intense negative emotions.   All parents of VHLers are welcome to join—whether you have questions...

  • Sept Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic "What hobbies, leisure activities, enjoyments, or fun things do you do? Share your blindness or...

  • August Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic "How does blindness add to mental health challenges? What practices, courses, books, etc. have you...

  • Aug Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

  • VHL 101 / Research Update Info Session

    New Patient Cohort Program
    Zoom / Online

      Recently diagnosed? Join us for a VHL 101 / Research Update info session! This is a one off workshop with Othon Iliopoulos, MD!   A few reasons why you should consider joining us:   Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts...

  • July Parents of VHL Patients Call

    Zoom / Online

    Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.   Our topic Increase your wellbeing by increasing your sense of happiness despite extremely stressful circumstances.   All parents of VHLers are welcome to join—whether you have questions...

  • July Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic "What has VHL taught you?"   All are welcome to join—whether you have questions or...

  • July Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

  • June Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic "What is the Best Advice about VHL or Vision Loss That You Have Gave or...

  • June Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...