The VHL Alliance proudly presents the VHL Veterans Panel! Prepare to be inspired as we bring together a group of incredible individuals who have faced the challenges of living with Von Hippel-Lindau (VHL) disease and are ready to share their experience. Date: November 16th, 2023Time: 7 pm ESTLocation: Zoom. What to Expect: ✨ Courageous Stories:...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Food and cooking as they relate to blindness" All are welcome to join—whether you...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Communicating with Medical Professionals" All are welcome to join—whether you have questions or just...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic How to increase positive emotions in your child to lessen intense negative emotions. All parents of VHLers are welcome to join—whether you have questions...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "What hobbies, leisure activities, enjoyments, or fun things do you do? Share your blindness or...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "How does blindness add to mental health challenges? What practices, courses, books, etc. have you...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Recently diagnosed? Join us for a VHL 101 / Research Update info session! This is a one off workshop with Othon Iliopoulos, MD! A few reasons why you should consider joining us: Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic Increase your wellbeing by increasing your sense of happiness despite extremely stressful circumstances. All parents of VHLers are welcome to join—whether you have questions...