Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic Find out how what you believe about VHL and its impact on you can increase or decrease your child’s health outcomes and what you can...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "What do I wish my family and friends would understand about my need for independence?"...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
This call is normally the first Monday of every month - It has been delayed in April due to a scheduling conflict with our facilitator! See you on April 17th. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "How do you get outside and take in the warmer days and warm weather activities?"...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. All parents of VHLers are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call...
Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHLers. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. All are welcome to join—whether you have questions or just want to find out more. There will be time near the...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first Monday of...
Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...
Recently diagnosed? Join us for our four week New Patient Cohort! This program will allow you to... Meet other VHL patients and caregivers and developed a personal support network Learn more about VHL disease from VHL experts Learn about the VHL Surveillance Guidelines and why they are important Learn about the importance of...