Recently diagnosed? Join us for a VHL 101 / Research Update info session! This is a one off workshop with Othon Iliopoulos, MD!

A few reasons why you should consider joining us:

• Meet other VHL patients and caregivers and developed a personal support network
• Learn more about VHL disease from VHL experts
• Learn about the VHL Surveillance Guidelines and why they are important
• Learn about the importance of VHL-experienced clinical care and the CCC program
• Learn about resilience, how to practice self-care and where to find support
• Learn how to be a better self-advocate and share your story
• Learn where to find available VHLA and external resources
• Learn how to get involved with VHLA and contribute to the VHL community

Register Here