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Event Series Event Series: New Patient Cohort Program

VHL 101 / Research Update Info Session

July 20, 2023 @ 7:00 pm - 8:30 pm EDT


Recently diagnosed? Join us for a VHL 101 / Research Update info session! This is a one off workshop with Othon Iliopoulos, MD!


A few reasons why you should consider joining us:


  • Meet other VHL patients and caregivers and developed a personal support network
  • Learn more about VHL disease from VHL experts
  • Learn about the VHL Surveillance Guidelines and why they are important
  • Learn about the importance of VHL-experienced clinical care and the CCC program
  • Learn about resilience, how to practice self-care and where to find support
  • Learn how to be a better self-advocate and share your story
  • Learn where to find available VHLA and external resources
  • Learn how to get involved with VHLA and contribute to the VHL community


Register Here


July 20, 2023
7:00 pm - 8:30 pm EDT
Event Category: