May Parents of VHL Patients Call
May 19, 2025 @ 8:00 pm - 9:00 pm EDT
Third Monday of every other month.
Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.
Our topic
“How to navigate the challenging emotions that come with having a child with a chronic illness (and how to know when we aren’t doing that well).”
All parents of VHL patients are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!
This facilitated call takes place on the third Monday of every other month at 8 PM ET. If you would like to join the call, please fill out the form below.
If you would like to join the call list please click here to register.