November 2nd Patient/Caregiver Call
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
7 events found.
Events
- Zoom / Online
VHL Alliance Medical Symposium
Hyatt Regency Boston/Cambridge 575 Memorial Drive, Cambridge, MA, United StatesAdvancing Research, Treatment, and Care for Von Hippel-Lindau Disease Join leading researchers, clinicians, and advocates for groundbreaking discussions on VHL disease management and innovation. The 17th International VHL Medical Symposium, hosted by the VHL Alliance and Mass General Brigham, will bring scientists, clinicians, and advocates together for two days of collaboration, idea exchange, and thought leadership. This...
November 18th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: We...
Free
December 7th Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
December 9th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: What...
Free
January 4th Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
January 13th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. *Please note that this call has been delayed one week due to Veterans Day! Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Shopping...
Free