Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic "How to increase positive emotions in your child to lessen the intense negative ones." All parents of VHL patients are welcome to join—whether you...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "What two things does blindness make most difficult for you and what workarounds have you...
Calling all young adults (ages 21-36) impacted by VHL! Join us in Phoenix, Arizona, from February 28th to March 2nd, 2025, for the Young Adult Retreat hosted by the VHL Alliance in partnership with the Mayo Clinic in Scottsdale. This weekend is designed for young adults with VHL to connect, learn, and build a...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "How do blindness and VHL affect our closest relationships? It can seem like our bodies,...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic "Creating healthy relationships with good communication skills." All parents of VHL patients are welcome to join—whether you have questions or just want to find...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "What stories do you tell yourself about your illness, your disability, yourself? How do those...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: "Decision Fatigue" All are welcome to join—whether you have questions or just want to...
