Mar Patient/Caregiver Call
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
12 events found.
Events
- Zoom / Online
Mar Parents of VHL Patients Call
Zoom / OnlineThis call typically takes place the third Monday of every other month. This month it will take place one week early due to a scheduling conflict. Our topic How to navigate incessant thoughts that weigh us down. All parents of VHLers are welcome to join—whether you have questions or just want to find...
Mar Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
April Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
April Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
May Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
May Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
VHL Awareness Month Walk
FeaturedBe a part of VHLA history by joining walkers all over the country in the first ever VHL walk! Sign up as a team or individual walker to fundraise. Then,...
May Parents of VHL Patients Call
Zoom / OnlineThird Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic How to navigate the challenging emotions that come with having a child with a chronic illness (and how to know when we aren’t doing that...
June Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
June Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
July Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...