Dec Patient/Caregiver Call

Zoom / Online

  All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first Monday of every month at...

Dec Low/No Vision Call

Zoom / Online

Second Wednesday of every month   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic "Holidays and all that comes with them: large gatherings, chores, performances, etc."   All are...

Jan Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

Jan Low/No Vision Call

Zoom / Online

Second Wednesday of every month   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic "What two things does blindness make most difficult for you and what workarounds have you...

Jan Parents of VHL Patients Call

Zoom / Online

Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.   Our topic Creating healthy relationships with good communication skills.   All parents of VHLers are welcome to join—whether you have questions or just want to find out...

Feb Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

Feb Low/No Vision Call

Zoom / Online

Second Wednesday of every month. Please note that this call is delayed one week due to Valentine's day!   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic "As blind...

Mar Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...

Mar Parents of VHL Patients Call

Zoom / Online

This call typically takes place the third Monday of every other month. This month it will take place one week early due to a scheduling conflict.   Our topic How to navigate incessant thoughts that weigh us down.   All parents of VHLers are welcome to join—whether you have questions or just want to find...

Mar Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources.   Our call topic "How do we care for our caregivers?"   All are welcome to join—whether you have...

April Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!   This facilitated call takes place on the first...