The 2023 Annual VHL Family Weekend is Coming… Register Today!The VHL Alliance is excited to partner with the Clinical Care team and VHL leaders from around the country to coordinate a phenomenal weekend of learning, community building, and sharing ideas for the future together. Based on a successful track record of educational and innovative speakers,...
Join us in Nashville for a Family Friendly fun walk! On Sunday morning of family weekend we will walk a one mile loop around Centennial Park to raise awareness for VHL. The walk will start at 9 am, and will conclude with a brunch for all participants! We're encouraging walkers to: -...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "How does blindness add to mental health challenges? What practices, courses, books, etc. have you...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "What hobbies, leisure activities, enjoyments, or fun things do you do? Share your blindness or...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic How to increase positive emotions in your child to lessen intense negative emotions. All parents of VHLers are welcome to join—whether you have questions...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Please join the VHL Alliance Community to celebrate and support our 30th Anniversary! We are making significant progress towards a cure for von Hippel Lindau and have many successes and supporters to honor and celebrate. As a special note and honor to the incredible amount of work that has been achieved, this year will be...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Communicating with Medical Professionals" All are welcome to join—whether you have questions or just...
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic "Food and cooking as they relate to blindness" All are welcome to join—whether you...
