VHL Alliance

Did you know? January is Mental Wellness Month Living with Von Hippel–Lindau (VHL) disease can involve moments of uncertainty, difficult

As we look back on 2025, we’re reminded of how much progress is possible when our community comes together. The

At the VHL Alliance we’re inspired by members of our community who share their stories to raise awareness for our

We’re proud to launch a new resource designed specifically for the VHL community: the VHL Research Library. Whether you’re living

This year, in partnership with select VHL Clinical Care Centers, the VHL Alliance is piloting a new program called VHL

The landscape of federal funding for biomedical research is shifting rapidly, bringing both opportunities and challenges for VHL researchers. Here’s

Disclaimer: The process of applying for disability benefits with VHL disease can vary based on individual circumstances, medical history, and