Are You Ready For VHL Connect?
This year, in partnership with select VHL Clinical Care Centers, the VHL Alliance is piloting a new program called VHL
This year, in partnership with select VHL Clinical Care Centers, the VHL Alliance is piloting a new program called VHL
The landscape of federal funding for biomedical research is shifting rapidly, bringing both opportunities and challenges for VHL researchers. Here’s
Disclaimer: The process of applying for disability benefits with VHL disease can vary based on individual circumstances, medical history, and
Supporting Mental Health in the VHL CommunityAs we kick off the new year, we’re here to remind you of the
As we enter 2025, the VHL Alliance is proud to unveil a series of new initiatives aimed at advancing care,
The 16th International VHL Medical Symposium recently took place in Milan, Italy. More than 200 scientists, clinicians, and patient advocates
Thank you to our guest contributor this month, Tessa Whitten! There are a few days of the year that I
At the VHL Alliance, we are committed to bringing you the latest developments in research and treatment options for Von

Here at the VHL Alliance, it’s clear that the financial burden of von Hippel-Lindau continues to be a top priority

“I faced a choice—crumble over or get back up.” – Ian Phillips, VHL Community Member Some people, for varying