VHL Alliance

There is a particular kind of relief that shows up on someone’s face when they walk into a room where

What is ASCO GU? Every year, clinicians and researchers from around the world gather to share the newest discoveries in

For individuals and families living with Von Hippel-Lindau disease (VHL), the journey is often defined by a series of challenges.

Did you know? January is Mental Wellness Month Living with Von Hippel–Lindau (VHL) disease can involve moments of uncertainty, difficult

As we look back on 2025, we’re reminded of how much progress is possible when our community comes together. The

Earlier this month, the VHL Alliance (with generous support from the Rath Family and Merck) hosted its first-ever VHL Research