As we look back on 2025, we’re reminded of how much progress is possible when our community comes together. The steps forward we made this year happened because of people like you who care about improving the lives of those affected by VHL!
What Your Donations Helped Us Accomplish in 2025
Secured $7 million in federal VHL research funding
Our advocacy work helped move significant federal resources toward VHL and VHL-related cancer research.
Deployed VHL research funding through our grant program
This year we supported promising projects aimed at advancing early detection, treatment options, and quality of life for people living with VHL. Your generosity allowed us to invest directly in researchers who are pushing VHL science forward.
Held our largest VHL Family Weekend ever
In partnership with the University of Michigan, we welcomed more families, clinicians, and researchers than ever before for three days of connection, learning, and support.
Strengthened community and awareness across the country
Through our new VHL Connect program and our national VHL Awareness Walk, we expanded opportunities for people to meet, share stories, and raise visibility for VHL.
Launched a digital research library
This new resource makes it easier for researchers, clinicians, and advocates to find the latest studies and scientific developments in one place.
Expanded our leadership team
New ambassadors, board members, and volunteers joined us this year and helped broaden our reach and impact.
All of this happened because of the generosity of donors who believe in our mission. We’re incredibly grateful for everyone who helped make these accomplishments possible!
Help Us Make an Even Bigger Impact in 2026
If you’re looking for ways to support the VHL Alliance before the end of the year, every gift made before December 31 will be doubled thanks to a 1:1 match up to $100,000.
Make a donation
Give at vhl.org/donate and help strengthen the future of VHL research and patient support.
Register a team for the VHL Awareness Walk
Register for a walk near you and help raise awareness while supporting families nationwide.
Create a Fundraise Your Way event
Turn a birthday, celebration, or personal challenge into a fundraiser that supports the VHL community.
One example of this was a recent event hosted by VHLA Ambassadors Gwendolyn Martinez & Hailey Miller. They hosted a Sip n Paint fundraiser in Michigan that raised more than $400 to support our mission!
Donate a car, boat, or camper
Your unused vehicle can be turned into meaningful support for our mission.
Ask your employer to match your donation
Many companies offer matching gifts that can double or even quadruple your impact alongside our 1:1 match!
Make a real estate gift
A donation of property can strengthen our programs and may offer tax benefits.
Donate stock
Giving appreciated securities is a simple and tax-efficient way to support VHL research and care. Contact us at [email protected] to learn more.
Thank you again for everything you do to lift up the VHL community. Your support fuels our work and helps create a brighter future for everyone affected by VHL!
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