July 6th Patient/Caregiver Call

Zoom / Online

First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

Free

July 8th Low/No Vision Call

Zoom / Online

Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

Free

Family Weekend 2026

Kimpton Everly Hotel 1800 Argyle Ave, Los Angeles, United States

The VHL Alliance invites you to join us for our annual Family Weekend, a unique opportunity to connect with the VHL community, hear from leading experts, and share experiences with...

$50

VHL Alliance Medical Symposium

Hyatt Regency Boston/Cambridge 575 Memorial Drive, Cambridge, MA, United States

Advancing Research, Treatment, and Care for Von Hippel-Lindau Disease Join leading researchers, clinicians, and advocates for groundbreaking discussions on VHL disease management and innovation. The 17th International VHL Medical Symposium, hosted...