November Patient/Caregiver Call
First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
12 events found.
Events
- Zoom / Online
November Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Confidence: when do we feel it, and when do we feel the lack of it?...
Free
Webinar Series: The Importance of Coordinated Care in Addressing VHL
Zoom / OnlineManaging Von Hippel-Lindau disease (VHL) requires more than treating individual tumors—it demands a carefully coordinated approach to care. Because VHL can affect multiple organ systems, patients benefit most when their care is managed by a multidisciplinary team that communicates and collaborates effectively. Join the VHL Alliance for our upcoming webinar, The Importance of Coordinated...
Free
December Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
VHL Connect: Atlanta
Hilton Millennium Center 2301 Sullivan Rd, College Park, GA, United StatesWhen: December 6, 2025 | 8:30 AM – 2:00 PM ET Where: Hilton Millennium Center, Atlanta 2301 Sullivan Rd, College Park, GA 30337 Cost: $10 (includes lunch) Join the VHL Alliance in Atlanta for VHL Connect, an in-person event designed to bring together people living with VHL, their families, and leading experts in the...
$10
December Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Friendships All are welcome to join—whether you have questions or just want to find...
Free
January Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
January Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Bucket lists, goals, achievements, accomplishments, etc. All are welcome to join—whether you have questions...
Free
February 2nd Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
Feb 11th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: What blindness or VHL related items would it be critical for you to pack in...
Free
March 2nd Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
March 11th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Household management: How do you do Home upkeep and maintenance? If you do it yourself,...
Free