• May Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

  • May Parents of VHL Patients Call

    Zoom / Online

    Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.   Our topic How to navigate the challenging emotions that come with having a child with a chronic illness (and how to know when we aren’t doing that...

  • June Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

  • June Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

  • July Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

  • July Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

  • July Parents of VHL Patients Call

    Zoom / Online

    Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL.   Our topic "Dealing with Uncertainty"   All parents of VHL patients are welcome to join—whether you have questions or just want to find out more. There will...

  • August Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...

  • August Low/No Vision Call

    Zoom / Online

    Second Wednesday of every month.   Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...

  • Family Weekend 2024 | Dallas, TX

    UT Southwestern 5201 Harry Hines Blvd, Dallas, TX, United States

    **Please note: You must register with the registration link below in order to attend!** Join us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! Immerse yourself in a community of strength as we come together to share our VHL experience, build lasting connections, and learn directly from VHL experts. UT Southwestern will...

    $50
  • September Patient/Caregiver Call

    Zoom / Online

    First Monday of every month.   All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...