March 11th Low/No Vision Call
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
Free
12 events found.
Events
- Zoom / Online
VHL Connect | Seattle
Join us for VHL Connect: Seattle on March 21st, 2026! Date: March 21st, 2026 Cost: $10 Location: 255 South King Street, 18th floor, Seattle, WA, 98104. We will...
$10
April 6th Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the...
Free
April 8th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and...
Free
Avances en la enfermedad de VHL y la investigación del cáncer renal: De la biología a nuevas terapias
Zoom / OnlineÚnase a la Alianza VHL para un seminario web informativo y atractivo el 13 de abril a las 6:00 p.m. (ET), presentado por el reconocido investigador y médico James Brugarolas, M.D., Ph.D. En esta sesión, el Dr. Brugarolas compartirá los últimos avances en la investigación de la enfermedad de Von Hippel-Lindau (VHL), incluyendo...
Free
May 4th Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
Parents of VHLers: Navigating Care, Emotions, and Growing Independence
Zoom / OnlineDate & Time: May 6, 2026 at 6:00 PM ET Location: Virtual (Zoom) Registration link: https://us02web.zoom.us/meeting/register/8C0h7JYFRKmXUjoeB184BA#/ Parenting a child with VHL comes with unique challenges, from balancing complex medical care to managing uncertainty and supporting your child’s emotional well-being at every stage. This webinar is designed specifically for parents and caregivers who are navigating...
Free
May 13th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Who were the most supportive people when you were losing your sight or going through...
Free
June 1st Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
June 10th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: Is it important for the broader VHL community to understand the needs, differences, and similarities...
Free
July 6th Patient/Caregiver Call
Zoom / OnlineFirst Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Free
July 8th Low/No Vision Call
Zoom / OnlineSecond Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: What mental health practices have you found both successful and accessible? What practices do you...
Free